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Do the testing.  

By Gwoodhood, 4 months ago

  Why? Because it helps the doctor's better understand your treatment path. It also helped in my case, my surgeon know the extent of my surgery. Not to mention it helps move the research needle a little...
Tired, just tired.  

By Gwoodhood, 4 months ago

  Here's the deal - you've gone through a lot and yet you still have to function. I had a double mastectomy, not kemo/radiation, just Tamoxifen and I'm so tired at 2pm I could crash every day! But oh ye...
Getting stronger  

By cleo, 4 months ago

  I consider myself a fairly spiritual person but not necessarily religious in the sense of organized religion, but I have gotten more receptive to religion since my diagnosis. Maybe it gave me the hope...
Dr. Gregory Crane  

By Kara C, 4 months ago

  My oncologist at KU is Dr. Gregory Crane. I have been very happy with him. During first initial stages of my treatment I was mostly focused on my surgeon and radiation doctor, but since these treatm...
Scar Treatment that's like GOLD!  

By Gwoodhood, 4 months ago

  BioCorneum Scar Gel Treatment - get it on Amazon. Not cheap but definitely works!
Dr. Christa Balanoff  

By Kara C, 4 months ago

  I felt very lucky to have been assigned Dr. Balanoff at KU as my surgeon. I found her and her team to be very caring and supportive. Surgery was the first team that I met with in my journey and Dr. ...
Keep your nipples if you can.  

By Gwoodhood, 4 months ago

  Why not? I felt like I would feel more comfortable and familiar when looking in the mirror and seeing something there that should be. I'm glad I did! It was a minor surgery before my mastectomy that w...
Dr. John Einck  

By Kara C, 4 months ago

  I had a wonderful experience with Dr. Einck at KU. I was not a clear case because of my age and my Onco score were both “on the line” of determining what the best course of treatment would be. !) Fu...
Choosing a Mastectomy  

By Gwoodhood, 4 months ago

  I was blessed with a choice. I chose the mastectomy for a few key reasons: 1. I had a family history of cancer even though there was not genetic test that confirmed the gene. 2. I learned if you have ...
I had my hysterectomy at the same time as my double mastectomy  

By Thriving7, 4 months ago

  My oncologist and gynecologist both told me that eventually had to have hysterectomy because I was BRAC2 and had triple negative. After doing some research I decided to have both procedures at the sa...
Needed time  

By Thriving7, 4 months ago

  I waited a few weeks to share with my boss. I needed to know the path for treatment and I needed time to process what this meant. My boss and team were very supportive. My job allowed me some flexi...
Leaning on Friends  

By Thriving7, 4 months ago

  When I shared with my sons they were very shocked, although supportive. At the time my youngest was in 5th grade and he was not quite sure what this meant, but he assumed the worst. One of his class...
RE: Dr. Meagan Dwyer  

By sara, 4 months ago

  I also see her and highly recommend. I'm a creative / visual learner and she makes great analogies that helps me better understand.
RE: I kept my cancer a secret, until it came back a 2nd time  

By cleo, 4 months ago

  Brene Brown uses the term "comparative suffering." She writes that "fear and scarcity immediately trigger comparison, and even pain and hurt are not immune to being assessed and ranked. My husband die...
RE: Meditation  

By fridakahlo, 4 months ago

  Hey there, Have you tried the calm app? Also, Boho Beautiful Yoga has some guided meditation that I like!
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