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New to the journey

First post and replies | Last post by Donna, 3 days ago

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I was diagnosed as DCIS a week ago after lumpectomy at Advent. stage 0, level 2, estrogen and progesterone positive. Radiation and hormone blockers as treatment have so many horrible side effects. For stage 0 cancer are these treatments necessary? Any other good options for treatment?

By Donna 5 days ago
I'm sorry that you had cancer but glad you caught it so early. If you are looking for a different approach maybe check out the Riordan Clinic in Overland Park. Good luck with everything!

By SharonT 5 days ago
I’m not sure Riordan looks like a real option for me. So traditional oncology has radiation and hormone blockers as primary/standard treatments? Not much else for stage 0 cancer? Hard to believe there are no treatments with less horrible side effects.

By Donna 5 days ago
I too was recently diagnosed with DCIS and learned about the risk diagnostic test for patients with DCIS by PreludeDx looking at biology of DCIS. Website says was developed with funding from Natl Cancer institute. Not sure Advent docs using but Radiation oncologist Brad Koffman is a fan. Test is done on your biopsy or surgical sample and assesses whether radiation is truly needed based on your biological make up. Dr Koffman is affiliated with Menorah Hospital.

By Cindyflo 4 days ago
@cindyflo thank you for this information. I will definitely check it out. any other options/info out there I am very interested.

By Donna 4 days ago
@Donna Hi! I have a few thoughts. They might sound contradictory, but I'm going to throw them out. I was offered radiation and hormone blockers as well. I was worried about both of them, but I did them because they were indicated. They sounded awful, but they weren't. Do I have some side effects? Yes, minor ones. And do I wonder about effects down the road? Yes, sometimes I do. The other thing I'll say is that you have the right to decide what to do with your body. It is your right not to do something that seems like overkill. It's your rig...

By janedoe7 3 days ago
Thank you Jane for your wisdom and insights. Wish I had a crystal ball to see the future. Then I might know what to do….

By Donna 3 days ago
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PinPointPatientRecruiting.com

First post and replies | Last post by Buttercup, 3 weeks ago

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PinPointPatientRecruiting.com is looking for participants in a study. You can email Brooke Benford at brooke@pinpointrecruiting.com for information and to see if you qualify for the current study they are looking for participants. I did not qualify, but thought I'd pass this along to others who might be interested in checking it out. Since my type is so rare, I am not surprised...but you never know! HAPPY MARCH 1ST!!!

By Buttercup 3 weeks ago

Almost 11 years!

First post and replies | Last post by momoftwo, 1 month ago

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First post and replies | Last post by janedoe7, 1 month ago

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First post and replies | Last post by Helen, 1 month ago

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First post and replies | Last post by jleeh, 2 months ago

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Breast Cancer Awareness Month is bothering me

First post and replies | Last post by momoftwo, 4 months ago

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Lumpectomy vs mastectomy

First post and replies | Last post by janedoe7, 5 months ago

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11 year survivor!

First post and replies | Last post by cleo, 6 months ago

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How are you handling your high risk diagnosis?

First post and replies | Last post by Helen, 6 months ago

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