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The Breast Cancer Club

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Directions: Below you will find all the posts that have been made on the Forum pages since launch in June 2024, listed from newest to oldest. Click on the title to read a post in its entirety or to reply to it. Posts for the Sunshine page and Bulletin Board are not included in this feed, as they are already listed newest first.

 

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RE: When to switch medical oncologist & PCP recommendations  

By Buttercup, 5 days ago

Forum Forum
  @spschmidt4 All questions should be viewed as valuable in someone's journey forward! Do NOT hesitate to ask...and if you don't find someone who considers it legit, ask others until you find someone...
RE: When to switch medical oncologist & PCP recommendations  

By Buttercup, 5 days ago

Forum Forum
  @holly Quite a few years back KU really wasn't interested in me anymore! I was so far out and no real reason to be seen by their specialists. So between my regular female breast specialist I was see...
RE: When to switch medical oncologist & PCP recommendations  

By KCSP4, 6 days ago

Forum Forum
  Holly I am sorry about your experience and I can completely relate. I also want to weigh in about Dr. O'Dea. She is my Oncologist and is great with standard medical care. She is not going to be hel...
RE: When to switch medical oncologist & PCP recommendations  

By Holly, 3 weeks ago

Forum Forum
  @buttercup ~ I love how you have been able to advocate and empower and educate people for so many years!!! And I really loved the perspective of God having a job for you over these decades!!! Praying ...
RE: When to switch medical oncologist & PCP recommendations  

By Buttercup, 3 weeks ago

Forum Forum
  Actually it's been years since I had any kind of mammogram as I don't have any known "breast tissue" since my bilateral. I get a Bone Density test done every other year as bone loss is an enemy of ag...
RE: When to switch medical oncologist & PCP recommendations  

By Holly, 3 weeks ago

Forum Forum
  @buttercup thank you so much for sharing your story! Oh my goodness….to imagine how far we have come in technology and the study of this disease…so thankful for God’s good was over your life!!!! I jus...
RE: When to switch medical oncologist & PCP recommendations  

By Buttercup, 3 weeks ago

Forum Forum
  Oh my Holly! What a nightmare! I am glad to see some "current" supporters!! I am a "long-timer", twice 1992 and 1998. Should have been dead both times because they knew they had nothing to combat ...
RE: When to switch medical oncologist & PCP recommendations  

By Holly, 3 weeks ago

Forum Forum
  @adjackson this helps a lot! I think I need the wisdom, education and experience of “research based medical advice” but to sit in the down and not receive any of it has been so frustrating!! This is ...
RE: When to switch medical oncologist & PCP recommendations  

By adjackson, 3 weeks ago

Forum Forum
  I will ditto the other response to your questions. I am still seeing Dr. O’Dea and just finished chemotherapy. I highly recommend. But if you ask for anything in the direction of holistic care, that’s...
RE: When to switch medical oncologist & PCP recommendations  

By Holly, 3 weeks ago

Forum Forum
  @iamasurvivor this is sooooo helpful and sounds like much more the oncological experience I was hoping for!!! Thank you tons for sharing this info with me!!! And as for Dr Brown “good at diagnosing an...
RE: When to switch medical oncologist & PCP recommendations  

By Iamasurvivor, 3 weeks ago

Forum Forum
  I do not believe Dr. Brown to be practicing holistic medicine, rather she focus on the medical needs. She is very matter of fact and practical and answers my questions and is thorough in her exams. ...
RE: When to switch medical oncologist & PCP recommendations  

By Holly, 3 weeks ago

Forum Forum
  @iamasurvivor ~ thank you! Can you read my question below to adjackson & provide any personal insight regarding Dr O’Dea…& I so appreciate your recommendation for Dr Jennifer Brown! I will che...
RE: When to switch medical oncologist & PCP recommendations  

By Holly, 3 weeks ago

Forum Forum
  @adjackson ~ thank you so much for your kindness & understanding! I have heard great things about her! How long ago were you under her care? Did you feel like you had to lead your care, that quest...
RE: When to switch medical oncologist & PCP recommendations  

By Iamasurvivor, 3 weeks ago

Forum Forum
  So sorry to hear this was your experience. I had/have a great experience at KU. My oncologist was Dr. O'Dea. That being said, I truly believe if you are not feeling good with your current team, the...
RE: When to switch medical oncologist & PCP recommendations  

By adjackson, 3 weeks ago

Forum Forum
  Breastie! First, sending love to you. Not aligning with your care team is stressful. It is an important aspect of your healing to trust those guiding your health decisions! Without knowing who your on...
When to switch medical oncologist & PCP recommendations  

By Holly, 3 weeks ago

Forum Forum
  I have had a rough experience at KU ~ just had my 1yr anniversary of my 1st appointment. My 1st surgeon defiantly withheld information causing an extra surgery, delay in plan of care & ultimately ...
RE: Medical Oncologist who focuses on prevention  

By Holly, 1 month ago

  @cynthiaaks Thank you for your comments and sharing! This is such a lost opportunity from our medical community and I am so grateful for your acknowledgement of its importance! I would love more info ...
RE: Medical Oncologist who focuses on prevention  

By Marie115, 1 month ago

  @cynthiaaks Yes!!!!! This is what I am searching for. I'll be reaching out soon. Thank you so much for the response. Marie
RE: Medical Oncologist who focuses on prevention  

By Cynthia Aks, 1 month ago

  Hi All, I am new to this forum but was sent Marie 115's recent post by Julie Rudman for comment. I am a retired breast surgeon also trained in Integrative Medicine. What I would like to share is that ...
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