Recent Posts by
The Breast Cancer Club
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Directions: Below you will find all the posts that have been made on the Forum and Clubhouse pages since launch in June 2024, listed from newest to oldest. Click on the title to read a post in its entirety or to reply to it. Posts for the Sunshine page and Bulletin Board are not included in this feed, as they are already listed newest first.
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RE: Breast Cancer Awareness Month is bothering me
By Buttercup, 3 weeks ago
Forum
Clubhouse
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| I was first diagnosed at age 39 in 1992. The drs knew they didn't have a chemo to use on my type but tried radiation. I had a lumpectomy done and 13 glass rods in the breast for 36 hours, then remov... | ||
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RE: Breast Cancer Awareness Month is bothering me
By janedoe7, 3 weeks ago
Forum
Clubhouse
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| Hi there. I would love to know more about how you flipped the negativity. You mentioned that you were a long time survivor. I don't know how long ago your treatment was or how far back the whole Pink ... | ||
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RE: Breast Cancer Awareness Month is bothering me
By Buttercup, 3 weeks ago
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Clubhouse
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| Hi! Julia Stegeman here... a long time survivor. love to help others find ways to flip the negativity of breast cancer and all the whoopla surrounding the publicity into positive directions for you.... | ||
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RE: Breast Cancer Awareness Month is bothering me
By janedoe7, 4 weeks ago
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Clubhouse
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| I just wanted to circle back since I am the one who started this conversation last month when I was being touchy about Breast Cancer Awareness Month. I'm happy to report that by the end of the month, ... | ||
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RE: Breast Cancer Awareness Month is bothering me
By cleo, 2 months ago
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Clubhouse
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| Someone just brought me cinnamon rolls with pink frosting. It was a miss, but it was her way of showing love and support. | ||
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RE: Lumpectomy vs mastectomy
By janedoe7, 2 months ago
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Clubhouse
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| Clarity!!! 😀 Wishing you the best with your surgery and recovery. We are here for you. Keep us posted. 🤗 | ||
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RE: Lumpectomy vs mastectomy
By BCsister, 2 months ago
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Clubhouse
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| I know this is a big decision. But, know that you and only you know what is best and believe in that! Onward and upward my friend! | ||
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RE: Lumpectomy vs mastectomy
By PKCG, 2 months ago
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Clubhouse
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| I met with Dr. Shook again last week and have decided to go ahead with the unilateral mastectomy on my L side with reconstruction eventually. I feel good about this decision but am ready for this to b... | ||
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RE: Breast Cancer Awareness Month is bothering me
By KristenC, 2 months ago
Forum
Clubhouse
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| The irony wasn't lost on me when I rang the bell after my final radiation treatment on October 1st in 2011. My hair was starting to come back in as dishwater brown fuzz and I was more than ready to bi... | ||
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RE: Breast Cancer Awareness Month is bothering me
By momoftwo, 2 months ago
Forum
Clubhouse
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| I was diagnosed in August 2013—that Oct. I was watching Good Morning America, and they did free screenings in honor of Breast Cancer Awareness Month - LIVE for all to witness (not the actual mammogram... | ||
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RE: Breast Cancer Awareness Month is bothering me
By KCSP4, 2 months ago
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Clubhouse
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| This month is also hard for me. I try to remember it is supposed to be a good thing even though it bothers me. The worst part for me is seeing ultra processed foods with their pink labels. How about... | ||
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Breast Cancer Awareness Month is bothering me
By janedoe7, 2 months ago
Forum
Clubhouse
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| It started when I turned on The Today Show and all three women on the screen were wearing pink. I realized it was October 1 and thought BLEH! I noticed to my surprise that I actually didn't want to wa... | ||
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RE: Lumpectomy vs mastectomy
By janedoe7, 2 months ago
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Clubhouse
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| That's so interesting about the implant! For what it's worth, Dr. Beahm did my surgery. Based on my initial imaging she thought I would need a mastectomy, but once we got all the information back, she... | ||
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RE: Lumpectomy vs mastectomy
By PKCG, 2 months ago
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Clubhouse
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| First off, I would like to thank all of you that have taken the time to give my your feedback. Hearing your journeys and how you have made your decisions is meaningful to me and gives me hope that I w... | ||
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RE: Lumpectomy vs mastectomy
By PKCG, 2 months ago
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Clubhouse
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| Thank you for your feedback. Since I first posted, I have seen my oncologist who is also leaning towards mastectomy for me. It is still an option to do lumpectomy but since I have 3 spots, and they al... | ||
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After BC Diagnosis...Getting back to healthy and staying healthy
By Buttercup, 1 day ago |
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| I'm a 2 time breast cancer survivor and I've known Sami since 2004 as we connected in the Young Survival Coalition group here in KC. She is dedicated to helping people after a cancer diagnosis and wi... | ||
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RE: Neuropathy from mastectomy
By Juice Lady, 3 weeks ago
Forum
Effects on your body
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| @ironmom5 Hi I am sorry you are experiencing discomfort. I am 12 years out this month. I regained feeling under my arm after about 2 years. I still get neuropathy in my feet, but all of it has les... | ||
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RE: Neuropathy from mastectomy
By Ironmom5, 3 weeks ago
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Effects on your body
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| I had 10 lymph nodes taken out of my right armpit area after a double mastectomy, and I can completely relate. I decided not to do reconstruction, so I wear a cami under my clothes. It often feels unc... | ||
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RE: Neuropathy from mastectomy
By Buttercup, 3 weeks ago
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Effects on your body
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| Hi! I had 36 hours of iridium implants in the right breast after a lumpectomy, followed with 28 external rad treatments...back in 1992 when probably a lot more rads spread than with the direct beams ... | ||
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Neuropathy from mastectomy
By Lear0411, 3 weeks ago
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Effects on your body
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| Anyone found something that works for neuropathy from the nerve damage from the mastectomy? I’ve tried so many things….nothing works. Clothes under that arm are so uncomfortable. | ||
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Lymphedema Help/Training
By Buttercup, 3 weeks ago
Forum
Other
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| University of Iowa is looking for breast cancer survivors with lymphedema problems and treatments who have been managing it at least 1 yr with Complete Decongestive Therapy and would like free trainin... | ||
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RE: Dr. Christa Balanoff at KU (Indian Creek campus)
By Iamasurvivor, 1 month ago
Forum
Breast surgeons
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| I agree Dr Balanoff is very compassionate and attentive to your needs. Glad you are doing well! What an emotional rollercoaster it has been! | ||
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Second Nature Breast Care Boutique
By Julie T., 2 months ago |
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| Second Nature started as a mother/daughter team of after breast surgery consultants working with women who have had a mastectomy, lumpectomy, reconstruction or implants. Second Nature offers personal... | ||
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RE: Nipple sparing surgery
By janedoe7, 2 months ago |
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| It's obviously not the same thing as a mastectomy, but I've had a breast lift so my nipples have also been removed and then put back. I wore a front-zip bra like they told me to for about a week, but ... | ||
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RE: Nipple sparing surgery
By Gwoodhood, 2 months ago |
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| Hi there, I had a mastectomy a year ago w reconstructive surgery. You will want bras that hook or snap or Velcro in front. Tight fitting feels better. Also I suggest getting button down shirts/PJ’s an... | ||
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RE: Nipple sparing surgery
By momoftwo, 2 months ago |
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| Hi there, My surgery was 11 years ago and I wonder if things have changed. I didn’t wear a bra at all. I wore button up shirts until I had reconstruction a month later. Do you have to wear a bra? I’m ... | ||
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RE: Nipple sparing surgery
By jleeh, 2 months ago |
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| What did you wear following the surgery? I had mine 4 weeks ago and have to wear a bra with cut out nipple holes. I have 2 weeks left in the compression bra and finding a shirt that doesn’t look ridic... | ||
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DIEP
By jleeh, 2 months ago
Forum
Treatment Decisions
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| I had a preventative mastectomy with DIEP reconstruction. (Belly fat) 6 years ago when I started this journey DIEP wasn’t an option for me. Did lots of research and met Dr. Collins at KU, very happy w... | ||
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RE: Should I get a preventative mastectomy
By jleeh, 2 months ago
Forum
Treatment Decisions
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| I’m 4 weeks out from my preventative mastectomy with DIEP. Not one regret. Insurance covered everything. Always here to answer questions if you have any. It took me 6 years to finally do it. | ||
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RE: Dr. Wagner at KU was wonderful!
By jleeh, 2 months ago
Forum
Breast surgeons
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| Completely agree! Kind and does beautiful work! | ||
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