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RE: New to this journey  

By Fiercelyfiesty, 3 weeks ago

  @janedoe7 thank you
RE: New to this journey  

By Fiercelyfiesty, 3 weeks ago

  @jleeh I am seeing J Wagner, Q Khan and J Einck
RE: New to this journey  

By jleeh, 3 weeks ago

  I had a preventative double mastectomy at KU in September. Happy to answer any questions for you. Who are you seeing? sending you all of my love!
RE: New to this journey  

By janedoe7, 3 weeks ago

  Welcome! I think that's a choice I would be very comfortable with. For what it's worth, when I want some direction from my doctors, I ask "If it were your wife/sister/daughter, what would you tell her...
New to this journey  

By Fiercelyfiesty, 3 weeks ago

  Newly diagnosed. Meeting my team Tuesday at KU. What questions should I ask? What do you wish you knew sooner? I have ductal carcinoma in situ and mestactic carcinoma in one lymph node. Personally, I ...
RE: Dr. Anne O'Dea  

By Iamasurvivor, 4 weeks ago

  100% agree here! Dr O’Dea was my oncologist. She carefully watched me during the entire cancer journey, adjusting my chemo because I had severe side effects. She brought me in for extra fluids after...
PinPointPatientRecruiting.com  

By Buttercup, 1 month ago

Forum Forum
  PinPointPatientRecruiting.com is looking for participants in a study. You can email Brooke Benford at brooke@pinpointrecruiting.com for information and to see if you qualify for the current study the...
RE: Almost 11 years!  

By momoftwo, 1 month ago

Forum Forum
  I'm well! Thank you 😊 I feel good; my family is well. I'm very fortunate. How are you doing??
RE: Rib cramps  

By janedoe7, 1 month ago

Forum Forum
  Just googled that! Thanks for the info. Glad you’re on here.
RE: Rib cramps  

By Screaminmimi, 1 month ago

Forum Forum
  @janedoe7 it's a tactile lymphedema pump it's a suit with all these tubes that hooks to a pump device and it kind of massages/ squeezes you
RE: Rib cramps  

By janedoe7, 1 month ago

Forum Forum
  @screaminmimi, What is this pump you speak of?
RE: Rib cramps  

By Screaminmimi, 1 month ago

Forum Forum
  @janedoe7 That's great that you didn't get lymphedema, mine isn't bad but it's annoying and I always worry it will get worse. I do have a pump and I use it. My seroma was in my abdominal incision I ha...
RE: Rib cramps  

By janedoe7, 1 month ago

Forum Forum
  I had a seroma too! Crazy pain! I had it drained but it filled back up within 24-48 hours. I got another 60cc's taken out of it and the rest absorbed over time. I was worried about developing lymphede...
RE: Rib cramps  

By Screaminmimi, 1 month ago

Forum Forum
  Thank you that is so true! I have also had good luck with healing. Except for a seroma after reconstruction. I can't take ibuprofen at all anymore and I worry about how much Tylenol I've had to take. ...
RE: Rib cramps  

By Screaminmimi, 1 month ago

Forum Forum
  @buttercup
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