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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By jleeh, 3 months ago
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Treatment Decisions
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| Hi Holly, I was preventative dmx with immediate DIEP at KU. I can't talk about the radiation side but I would say DIEP is totally worth it. I am open to any question you have - the first 5 days are ha... | ||
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Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By Holly, 3 months ago
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Treatment Decisions
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| I am scheduled to have a nipple sparing DMX on 4/15. I am BRCA2+ and just finished chemo for HR+HER2-. I will have 20 rounds of radiation. I have complete peace about the DMX part as screening didn’t ... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 3 months ago
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| @jleeh Would appreciate any advice you're willing to share for sure. | ||
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RE: HI! Previvor and new Mom just moved back
By jleeh, 3 months ago
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| @keepchanging I’m almost 2 years out from preventative double mastectomy. The fear does creep in as you get closer. I lost my mom recently to breast cancer and before she passed she told me that doing... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 3 months ago
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| @janedoe7 A list of reasons really but on the short list; scan anxiety and timing. Timing and health more than anything. I'm as "fit" as I'm going to be and my kids aren't dependent on me physically ... | ||
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RE: HI! Previvor and new Mom just moved back
By janedoe7, 3 months ago
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| @keepchanging, good luck with your double mastectomy surgery! I was curious what tipped the scale for you from monitoring to surgery. Were you waiting for the right time? Have you had one too many sca... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 3 months ago
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| Hi Hailey. Previvor here too. Living the dream with a couple of rogue gene mutations. 😉 I've been monitoring for a couple of years now, planning for DMX surgery in a couple of weeks through KU. ... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Buttercup, 3 months ago
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Forum
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| One strategy for timing won't probably be best for all gals. Re: summertime... A/C that shouldn't be a huge problem. Biggest hurdle is finding things to help you stay cool if you have to sit out i... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Marie115, 4 months ago
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Forum
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| @s2425 Thank you for sharing your experience. I have decided to post pone. The garments seem to be the most challenging recovery step. Our heat, small kids, summer, work... all need to be considered. ... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By S2425, 4 months ago
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| Hi - I had a bilateral mastectomy and had reconstruction 6 months later with implants and fat transfer from my stomach. I really hated the compression garment, which I wore 24/7 for 6 weeks. Going to... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Marie115, 4 months ago
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Forum
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| Thank you for sharing your story and insight Julia. I had a tough time after my initial surgery sitting still and not lifting- more challenging on me mentally. As a mom we are used to doing it all! My... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Buttercup, 4 months ago
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| Back in the dark ages (1998) before micro vascular techniques, I had bilateral mastectomies with fat transfer from lower abdomen. (In those day you had to keep the fat's blood supply. So my lower tum... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Marie115, 4 months ago
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Forum
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| @jleeh 🤗 | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By jleeh, 4 months ago
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| My kiddos were 12, 12, and 9. I waited until September so we could still pool during the summer. Didn’t want to lose that time with them. I was also preventative and could wait. ❤️ | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Marie115, 4 months ago
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| @jleeh Thanks Jenny. I worry about early summer and the heat. I have young kids and they are super active. Ill have to be up and running for the summer as soon as I can. | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By jleeh, 4 months ago
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Forum
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| Hello! I had a DIEP flap procedure done at KU in September 2024. You’ll learn to love your compression, the heat won’t impact you too much. The first 12 days are hard and you’ll be inside anyway but ... | ||
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Fat transfer after mastectomy reconstruction recovery
By Marie115, 4 months ago
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| Hi fellow breast cancer warriors! Survivor of invasive ductal carcinoma, having fat transfer done mid May post bilateral mastectomy reconstruction. For my fellow warriors that have gone through this,... | ||
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RE: July 28th Gathering/Walk at Oak Park Mall
By Buttercup, 4 months ago
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| Hope all that got to come to this had a good time! Am doing ok from my right shoulder surgery... finally am off rx pain meds. always feels sooo good to get to this point where the brain can think m... | ||
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RE: HI! Previvor and new Mom just moved back
By sjherman, 5 months ago
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| Hi Hailey! I had never heard the term "Previvor" before, but I am a Previvor as well, with no known breast cancer genes. I am also from Chicago. I loved raising my children in KC. Congrats on your ... | ||