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RE: Post-op pain/tightness due to radiation  

By janedoe7, 4 months ago

  Me too. With PT, yoga and stretching, my radiated side is "darn close" to normal. Considering where I started, I'm very happy. I never thought I could make this much progress. I do have to stay on top...
RE: I kept my cancer a secret, until it came back a 2nd time  

By janedoe7, 4 months ago

  I relate to what you said about feeling guilty about not having chemo. I always feel like I have to say "but I didn't have chemo," especially after someone I know who DID have chemo said a few things ...
Dr. Simran Elder  

By naan05, 4 months ago

  I highly recommend Dr. Simran Elder at Advent Health. She is knowledgeable, caring, and a great listener. She always takes the time to answer all my questions and address my concerns.
Dr. Shane R Stecklein  

By naan05, 4 months ago

Forum Radiologists
  I highly recommend Dr. Shane R. Stecklein at the University of Kansas Medical Center. He takes the time to explain everything and listens to any concerns. He alway shows compassion and has the best be...
Choosing a lumpectomy over a double mastectomy  

By YoliV5590, 4 months ago

  The 1st time I was diagnosed (DCIS), I remember the doctor saying we could do a lumpectomy to save the breast or to do a precautionary double mastectomy. The first thing I said was "Of course I want t...
Did the testing  

By naan05, 4 months ago

  My surgeon had recommended that I get genetic testing done. My genetic test came back negative. Since the results were negative, I opted for a single mastectomy instead of double mastectomy. I made th...
Cold Capping  

By naan05, 4 months ago

  I had to do four rounds of TC chemo. I was lucky to be able to cold cap. Advent Health offered cold capping by DigniCap. By cold capping I was able to save half my hair. I would highly recommend cold...
I kept my cancer a secret, until it came back a 2nd time  

By YoliV5590, 4 months ago

  I was diagnosed with DCIS, stage 0, in 2010. There had never been an instance of cancer in my family so aside from being devastated this was happening to me, I felt that I needed to keep this private....
Waiting for biopsy results  

By FOF101, 4 months ago

  Waiting for the results of my biopsy was really hard. I tried to stay positive, but I knew in my heart that I had breast cancer. When the Dr. called I was home alone. I got all information and tried n...
Meditation  

By janedoe7, 4 months ago

  I am interested in starting a meditation practice. Several years ago I tried the Headspace app but I felt like all the sessions were basically the same thing. If anyone has a suggestion of how to get...
A PILL A DAY  

By FOF101, 4 months ago

  It’s been 1 year and 4 months since my last radiation. I’ve been on the estrogen blocking pill Anastrozole and I have to take it for 5-7 years. I have not had any side effects on this pill, but I did ...
Waiting game  

By FOF101, 4 months ago

  After I was diagnosed with breast cancer I wanted to find out if I had the BRCA gene. I have a daughter and wanted to know if I was passing on this gene. The results would also lead me to my surgery d...
Post-op pain/tightness due to radiation  

By MindyLou, 4 months ago

  I had a lumpectomy, which was a breeze. The anesthesiologist gave me a dose of gabapentin pre-op, said it was shown to reduce post-op pain. I only used Tylenol twice for pain. I had to go back and ...
Nail problems  

By MindyLou, 4 months ago

  I had nail problems from my chemo (the taxane group is one culprit). My nails became loose. After chemo, I lost both of my big toenails, which did grow back. All of my toenails have become thickene...
Have a medical professional answer questions for your children  

By Gwoodhood, 4 months ago

  I was fortunate to have Dr. O'Dea (KU Oncology) offer to meet with my two children to discuss my diagnosis and answer any questions they may have. Understanding that they may have questions that are h...
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