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Lymphedema sleeve
By SharonT, 3 months ago
Forum
Effects on your body
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| I have a question for those of you who had lymph nodes removed but have not developed lymphedema. Do you wear a lymphedema sleeve (compression sleeve) when you fly? I was told to wear one on airplanes... | ||
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Didn't hurt my implant
By SharonT, 4 months ago |
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| I have had breast implants for many years. I was worried about what the radiation would do to my implant, which is under the muscle. Both the radiation oncologist and the plastic surgeon said that the... | ||
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Telling early worked better for me
By SharonT, 4 months ago
Forum
Talking About Cancer
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| I had a lumpectomy and no chemotherapy, so my appearance never changed. I could have gotten by without telling people, but I'm glad that I did. I feel closer to the people I told and I think that they... | ||
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Telling my boys
By tpir, 4 months ago
Forum
Talking About Cancer
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| I had been sick for MONTHS, with no real diagnosis, so it was almost a relief breaking the news to my children. We finally had answers! My husband and I sat our three boys down (ages 8, 12 & 13) ... | ||
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Opportunity to educate
By SharonT, 4 months ago
Forum
Talking About Cancer
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| I answered every question I was asked about my cancer because it was an opportunity to educate. I think a lot of the people were seeking comfort, looking for information that could help them believe t... | ||
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I was in 3 trials
By MindyLou, 4 months ago
Forum
Treatment Decisions
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| A clinical trial helps us (potentially) and others. I agreed to 3 studies that were low enough risk that I felt I would not receive significant harm and would potentially benefit. These were 2017 st... | ||
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I have been on it for 6.5 years
By MindyLou, 4 months ago |
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| I was post-menopausal and was started on Arimidex (anastrozole). I had some hot flashes initially, but they subsided. Maybe some joint stiffness, but it is possible I would have had that anyway due ... | ||
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I was offered the testing
By MindyLou, 4 months ago
Forum
Treatment Decisions
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| I had an aunt and a great aunt with breast cancer. My father died of prostate cancer. My testing (circa 2017) showed two mutations that were not related to any of these. My oncologist was not at al... | ||
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Yes, radiation for me
By MindyLou, 4 months ago |
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| Due to my stage, radiation was a necessary part of treatment. In 2017, the standard of care was 6 weeks for my stage III breast cancer. I was offered a study at KU for 4 weeks, the standard of care ... | ||
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Chemo was life saving for me
By MindyLou, 4 months ago |
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| I had 2 indications for chemo. My thinking was "why wait for the cancer to spread"? I signed right up for all of the recommended chemo knowing full well it would attack normal cells as well as the c... | ||
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I never considered not to have surgery
By MindyLou, 4 months ago
Forum
Treatment Decisions
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| I was 53 at diagnosis and had stage IIb (stage IIIa post-op as my positive node total was 3). Surgery/treatment for early stage (I-III) intraductal breast cancer is a no-brainer for me. I suppose if... | ||
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My thoughts on using own tissue (DIEP flap)
By MindyLou, 4 months ago
Forum
Treatment Decisions
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| I ended up choosing a lumpectomy, but was also offered mastectomy. Had I chosen mastectomy in 2017, I would have had the implants. Although initially tempted by an insurance-covered tummy tuck, there... | ||
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I chose lumpectomy
By MindyLou, 4 months ago
Forum
Treatment Decisions
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| I was offered: 1. Lumpectomy + axillary lymph node dissection OR sentinel lymph node biopsy (a study at the time) for my Stage IIb R intraductal cancer. This was circa 2017. As sometimes happens, I... | ||
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Protect your skin
By SharonT, 4 months ago |
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| I did fine with radiation but wanted to mention that the radiation field was bigger than I thought it was. I probably should have realized that it wasn't just going to hit my breast, but I didn't thin... | ||
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Tamoxifen - It’s going to be “ok”
By Kara C, 4 months ago |
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| I was very lucky to find my cancer super early. I had a lumpectomy and radiation and then was told I needed 5 years of hormone therapy. Being Pre-menopausal and the age of 53 my doctor decided to st... | ||