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Local support groups

First post and replies | Last post by thebreastcastg, 6 months ago

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I’m a year+ post-op, ongoing endocrine therapy. Medically speaking, I am doing okay. Emotionally, not so well. My medical anxiety is significantly heightened following my mom’s death from cancer (not breast) a few months ago. My wonderful, regular therapist suggested looking into local BC support groups for extra support. I did not see a BC specific support group in the KU Med turning point catalogue. I reached out to Gilda’s club to see what might be a fit. Has anyone participated in a helpful local support group? Appreciate any thoughts.

By ddhill1 6 months ago
Hey so Gilda’s Club has a support group for BC survivors who aren’t in active treatment (they also have one for active treatment) but the club has been so great to me these last couple months. I think anyone who utilizes them benefits well. Even if you just attend their classes, art or like writing through healing, they’re some great people there

By 4jordanb 6 months ago
Hi - I am about a year out also and doing well medically also, but agree with the mental side and anxiety. I've never had anxiety before, so this is new to me. I've tried the Tuesday calls through Gilda's Club a few times, but there were not a lot of people on the call so it wasn't very helpful to me. I know they have a Meet Up event on 11/3 in the evening that is also a dinner. I've reached out to them with some questions, as I can no longer drive at night due to what the chemo has done to my eyes, so trying to find out if spouses can go to t...

By beachwalk... 6 months ago
@beachwalkerdeb I’m sorry to hear you are experiencing this, too. Thanks for sharing this insight into Gilda’s club. Nights and in person can be tricky for me as well due to scheduling around young children, so I may also ask some questions when Gilda’s club gets back in touch with me and will share here. I’m going to contact KU Med about their “survivorship services” and see if there’s anything there different than the Turning Point catalogue. Will share that, too. Hopefully some other members have other resources to share. In the meantime, yo...

By ddhill1 6 months ago
Gilda's has online support groups, plus will offer free therapy sessions (I think 6). You can also reach out to Susan G. Komen and they will answer or just listen to what you need. The Breast Cancer Club has a link to organizations in the area. Prayers and good vibes heading your way.

By dld 6 months ago
@ddhill1 Thanks and I am happy to talk or text or share support you anyway I can. We all have to be in this together. Also, a lot of Guilda’s calls with Support group are done online so you can do those from home.

By beachwalk... 6 months ago
@beachwalkerdeb I’m also a year out from surgery. I never looked into Gilda’s club. Also did my treatment through KUMED. If anyone wants to talk/get coffee let me know! Maybe we can start our own group 😊

By Cynthiape... 6 months ago
I think that sounds like a good idea. I would be glad to meet. Just need evenings as I work.

By beachwalk... 6 months ago
@cynthiapeterson22 I would also be interested in a chat over coffee sometime, lovely idea

By ddhill1 6 months ago
@beachwalkerdeb thank you! I did hear back from Gilda’s club today and she said while this meetup is geared towards those with cancer/survivors (rather than family support), they completely understand if someone is needing a partner to drive them, and they are welcome to stay if they'd like to. They don't want that to be a barrier.

By ddhill1 6 months ago
@ddhill1 Thanks for letting me know, I hadn't not heard back yet.

By beachwalk... 6 months ago
Hey everyone. I’m going to give everyone my email. That way we can set up a dinner/coffee meet up for those interested. cynthiapeterson22 @gmail.com

By Cynthiape... 6 months ago
^ I love this idea. Let me know if I can help. If you prefer to keep your information off the internet, I can connect you using the emails associated with your user names. Also, once you select a date and location, I can send an invitation to everyone else in a Mammorandum if you'd like.

By thebreast... 6 months ago
Here is my email beachwalkerdeb@gmail.com. Are any you doing the breast cancer walk next weekend? I’m planning on going.

By beachwalk... 6 months ago
@thebreastcastg that would be great. Please connect me with emails. I will let you know when we get a meet up date set.

By Cynthiape... 6 months ago
Hi - I was wondering if this is still in the works to be set up. I'm happy to help. I think it would be a great thing to support one another and learn from one another.

By beachwalk... 6 months ago
@beachwalkerdeb, That would be wonderful! I sent an email connecting the four of you who were involved in this conversation a while back--looks like October 19--but I guess nothing came of it. Would you like to take the lead and try again with your small group? Or would you like me to put your contact info in a mammorandum to everyone? Happy to help in any way that I can!

By thebreast... 6 months ago
I don't recall getting an email with all of these connections. I'm happy to reach out to try and connect with them if you could please send me their emails again. Thanks!

By beachwalk... 6 months ago
Just resent the original email to you. Good luck and keep me posted!

By thebreast... 6 months ago
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Having a very hard time today - needed this as an outlet

First post and replies | Last post by momoftwo, 12 months ago

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New to this journey

First post and replies | Last post by Gwoodhood, 1 year ago

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sharing about cancer matters

First post and replies | Last post by CCSK, 1 year ago

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On July 28, 2024, I posted for the first (and until today, the only) time on this website under the Sunshine section. I did it to encourage my friend Julie at the start of her cancer journey. Today, I am six weeks past my own diagnosis and taking my own steps on this path. Julie forwarded that earlier post to me this morning, which I'd totally forgotten until just now. So much has happened in the past six months, and especially the past six weeks. Since being diagnosed, I've been reminded that words are good, but deeds are better. Julie's de...

By CCSK 1 year ago

Scared of the “C” word

First post and replies | Last post by FOF101, 2 years ago

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I had a really hard time telling my high school daughter that I had breast cancer because we are all so scared of the “C” word. I knew she would freak out so I stayed really strong when I told her. I let her know I caught it early and that I was going to be ok. I think since I didn’t lose my hair it was easier because I looked the same. I did the genetic testing to make sure I did not have the BRCA gene and that took a weight off my shoulders. Although majority of breast cancers are not hereditary but they are spontaneous.I thought that was rea...

By FOF101 2 years ago

First post and replies | Last post by SharonT, 2 years ago

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Telling early worked better for me

First post and replies | Last post by KCSP4, 2 years ago

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First post and replies | Last post by KCSP4, 2 years ago

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I was open about it

First post and replies | Last post by Iamasurvivor, 2 years ago

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No rhyme or reason

First post and replies | Last post by Iamasurvivor, 2 years ago

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