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RE: Local support groups  

By dld, 6 months ago

  Gilda's has online support groups, plus will offer free therapy sessions (I think 6). You can also reach out to Susan G. Komen and they will answer or just listen to what you need. The Breast Cancer C...
RE: Itchy Scalp  

By beachwalkerdeb, 6 months ago

  Hi - I had this problem and got something off Amazon that helped: Derma Vitality Soothing Scalp Cream.
RE: Itchy Scalp  

By 4jordanb, 6 months ago

  One of my nurse friends gave me Nizoral anti-dandruff. It helped my scalp soooo much. My head was irritated and not happy but this shampoo made my scalp smile! I hope you find something that works for...
RE: Local support groups  

By ddhill1, 6 months ago

  @beachwalkerdeb I’m sorry to hear you are experiencing this, too. Thanks for sharing this insight into Gilda’s club. Nights and in person can be tricky for me as well due to scheduling around young ch...
Itchy Scalp  

By FlumenLuter, 6 months ago

  Hey all, I'm a 38-year-old from OP with triple negative breast cancer. I'm in my 3rd week of chemo (Carbo/Taxol with immunotherapy) and my scalp is starting to get itchy & irritated. I've had a dr...
RE: Local support groups  

By beachwalkerdeb, 6 months ago

  Hi - I am about a year out also and doing well medically also, but agree with the mental side and anxiety. I've never had anxiety before, so this is new to me. I've tried the Tuesday calls through Gi...
RE: Local support groups  

By 4jordanb, 6 months ago

  Hey so Gilda’s Club has a support group for BC survivors who aren’t in active treatment (they also have one for active treatment) but the club has been so great to me these last couple months. I think...
Local support groups  

By ddhill1, 6 months ago

  I’m a year+ post-op, ongoing endocrine therapy. Medically speaking, I am doing okay. Emotionally, not so well. My medical anxiety is significantly heightened following my mom’s death from cancer (not ...
RE: Nerve pain  

By Iamasurvivor, 6 months ago

Forum Forum
  I’m sorry to hear this. I did not have elbow pain from radiation. Are you doing any other exercises that could be causing it or taking any other medications that could be causing it? Were you in an ...
RE: Nerve pain  

By Kpitzer02, 6 months ago

Forum Forum
  I did not have elbow pain, but have had nerve pain on the right leg and sciatic pain. I am still doing PT for the issues on my right side from radiation. Radiation does a lot more damage, I feel, lo...
Nerve pain  

By SLB, 6 months ago

Forum Forum
  I just finished 20 rounds of radiation on Sept. 11th. A few weeks after that I started getting a horrible pain in my right elbow. Now I am getting that same pain in my left elbow & the pain runs d...
RE: Cording (Axillary Web Syndrome)  

By Buttercup, 6 months ago

  Decades ago in the dark ages (1992) I had some problems with this after 29 nodes removed with my first round of breast cancer. Fortunately a very good nurse told me an exercise to do to start with an...
RE: Cording (Axillary Web Syndrome)  

By janedoe7, 6 months ago

  I personally had to do PT for my cording before radiation. Your arms are above your head during radiation, and I couldn’t have gotten my left arm in place without therapy first. I also couldn’t have p...
RE: Cording (Axillary Web Syndrome)  

By Nope, 6 months ago

  Thanks you all for your insight, greatly appreciate it. It sounds like PT is definitely in my future. I was just scheduled for my pre radiation treatment scans so PT will be on the back burner. For n...
RE: Cording (Axillary Web Syndrome)  

By Doriansgrandma, 6 months ago

  My sister has terrible cording problems. Tons on therapy but it didn’t help. Therapist said that is very unusual though. I’m nineteen year survivor and never had cording. Mastectomy and 8 rounds o...
RE: Cording (Axillary Web Syndrome)  

By Iamasurvivor, 6 months ago

  Hi. I also had lumpectomy with sentinel node biopsy and had significant tightness in the armpit post surgery. I started the exercises that were recommended by my physician team post surgery and it w...
RE: Cording (Axillary Web Syndrome)  

By janedoe7, 6 months ago

  Cording is so painful! I'm sorry you're dealing with it. My timeline was exactly the same as yours. I'd been cautioned that it could happen, so I knew immediately what it was and jumped to treat it ri...
Cording (Axillary Web Syndrome)  

By Nope, 6 months ago

  Good morning! I’m 4 weeks post op from lumpectomy with SLNB. About a week ago I noticed worsening range of motion in my arm and a “cord” in my armpit on the surgery side. The lymphedema RN confirmed i...
Relief from Radiation  

By Ironmom5, 7 months ago

Forum Forum
  I was diagnosed almost two years ago with breast cancer and had 28 radiation treatments following surgery. One product that helped me more than anything was the Aquaphor spray, which I put on after I ...
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