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& personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP  

By Janymiller, 2 days ago

  I had a nipple sparing bilateral mastectomy in 2017 at KU. I had expanders placed and had implants about 6 weeks later. Im negative for BRCA gene, but my breast surgeon did tell me that my nipples w...
RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP  

By KeepChanging, 2 days ago

  Hi @holly For what its worth I am scheduled for my NSM to expanders at KU next week as well. I am BRCA2+. My surgery will be risk-reducing due to the mutation rather than for cancer treatment howev...
RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP  

By S2425, 2 days ago

  Hi @holly, I had a double mastectomy at KU that was nipple sparing, and I had tissue expanders to prepare for implants. I didn’t have chemo or radiation. It has been over a year since my reconstructiv...
RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP  

By momoftwo, 2 days ago

  Hi Holly, First off, you don't ever have to apologize in this group. We are here to hold each other up. You can be all over the place or laser-focused. We get it and want to help! I was BRCA negative,...
RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP  

By LWilliams816, 2 days ago

  Hi Holly! I had a nipple sparing DMX back in early October and opted for reconstruction with silicone implants. During the surgery, they installed expanders, which are sutured to your chest wall. I c...
RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP  

By jleeh, 2 days ago

  Hi Holly, I was preventative dmx with immediate DIEP at KU. I can't talk about the radiation side but I would say DIEP is totally worth it. I am open to any question you have - the first 5 days are ha...
Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP  

By Holly, 2 days ago

  I am scheduled to have a nipple sparing DMX on 4/15. I am BRCA2+ and just finished chemo for HR+HER2-. I will have 20 rounds of radiation. I have complete peace about the DMX part as screening didn’t ...
RE: HI! Previvor and new Mom just moved back  

By KeepChanging, 5 days ago

Forum Forum
  @jleeh Would appreciate any advice you're willing to share for sure.
RE: HI! Previvor and new Mom just moved back  

By jleeh, 6 days ago

Forum Forum
  @keepchanging I’m almost 2 years out from preventative double mastectomy. The fear does creep in as you get closer. I lost my mom recently to breast cancer and before she passed she told me that doing...
RE: HI! Previvor and new Mom just moved back  

By KeepChanging, 6 days ago

Forum Forum
  @janedoe7 A list of reasons really but on the short list; scan anxiety and timing. Timing and health more than anything. I'm as "fit" as I'm going to be and my kids aren't dependent on me physically ...
RE: HI! Previvor and new Mom just moved back  

By janedoe7, 7 days ago

Forum Forum
  @keepchanging, good luck with your double mastectomy surgery! I was curious what tipped the scale for you from monitoring to surgery. Were you waiting for the right time? Have you had one too many sca...
RE: HI! Previvor and new Mom just moved back  

By KeepChanging, 1 week ago

Forum Forum
  Hi Hailey. Previvor here too. Living the dream with a couple of rogue gene mutations. 😉 I've been monitoring for a couple of years now, planning for DMX surgery in a couple of weeks through KU. ...
RE: Fat transfer after mastectomy reconstruction recovery  

By Buttercup, 1 week ago

Forum Forum
  One strategy for timing won't probably be best for all gals. Re: summertime... A/C that shouldn't be a huge problem. Biggest hurdle is finding things to help you stay cool if you have to sit out i...
RE: Fat transfer after mastectomy reconstruction recovery  

By Marie115, 3 weeks ago

Forum Forum
  @s2425 Thank you for sharing your experience. I have decided to post pone. The garments seem to be the most challenging recovery step. Our heat, small kids, summer, work... all need to be considered. ...
RE: Fat transfer after mastectomy reconstruction recovery  

By S2425, 3 weeks ago

Forum Forum
  Hi - I had a bilateral mastectomy and had reconstruction 6 months later with implants and fat transfer from my stomach. I really hated the compression garment, which I wore 24/7 for 6 weeks. Going to...
RE: Fat transfer after mastectomy reconstruction recovery  

By Marie115, 3 weeks ago

Forum Forum
  Thank you for sharing your story and insight Julia. I had a tough time after my initial surgery sitting still and not lifting- more challenging on me mentally. As a mom we are used to doing it all! My...
RE: Fat transfer after mastectomy reconstruction recovery  

By Buttercup, 3 weeks ago

Forum Forum
  Back in the dark ages (1998) before micro vascular techniques, I had bilateral mastectomies with fat transfer from lower abdomen. (In those day you had to keep the fat's blood supply. So my lower tum...
RE: Fat transfer after mastectomy reconstruction recovery  

By Marie115, 3 weeks ago

Forum Forum
  @jleeh 🤗
RE: Fat transfer after mastectomy reconstruction recovery  

By jleeh, 3 weeks ago

Forum Forum
  My kiddos were 12, 12, and 9. I waited until September so we could still pool during the summer. Didn’t want to lose that time with them. I was also preventative and could wait. ❤️
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