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New to the journey

First post and replies | Last post by Iamasurvivor, 1 year ago

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I was diagnosed as DCIS a week ago after lumpectomy at Advent. stage 0, level 2, estrogen and progesterone positive. Radiation and hormone blockers as treatment have so many horrible side effects. For stage 0 cancer are these treatments necessary? Any other good options for treatment?

By Donna 1 year ago
I'm sorry that you had cancer but glad you caught it so early. If you are looking for a different approach maybe check out the Riordan Clinic in Overland Park. Good luck with everything!

By SharonT 1 year ago
I’m not sure Riordan looks like a real option for me. So traditional oncology has radiation and hormone blockers as primary/standard treatments? Not much else for stage 0 cancer? Hard to believe there are no treatments with less horrible side effects.

By Donna 1 year ago
I too was recently diagnosed with DCIS and learned about the risk diagnostic test for patients with DCIS by PreludeDx looking at biology of DCIS. Website says was developed with funding from Natl Cancer institute. Not sure Advent docs using but Radiation oncologist Brad Koffman is a fan. Test is done on your biopsy or surgical sample and assesses whether radiation is truly needed based on your biological make up. Dr Koffman is affiliated with Menorah Hospital.

By Cindyflo 1 year ago
@cindyflo thank you for this information. I will definitely check it out. any other options/info out there I am very interested.

By Donna 1 year ago
@Donna Hi! I have a few thoughts. They might sound contradictory, but I'm going to throw them out. I was offered radiation and hormone blockers as well. I was worried about both of them, but I did them because they were indicated. They sounded awful, but they weren't. Do I have some side effects? Yes, minor ones. And do I wonder about effects down the road? Yes, sometimes I do. The other thing I'll say is that you have the right to decide what to do with your body. It is your right not to do something that seems like overkill. It's your rig...

By janedoe7 1 year ago
Thank you Jane for your wisdom and insights. Wish I had a crystal ball to see the future. Then I might know what to do….

By Donna 1 year ago
@donna I was fortunate that the results from DCISionRT showed that my 10 year risk recurrence was very low with or without radiation in conjunction with the wide clean margin from surgery and my doctors did not recommend radiation. I have started hormone blocker Anastrozole 1 mg. Amazed at new medical advances

By Cindyflo 1 year ago
Hi Cindyflo! Thank you for the info. Was the test covered by your insurance? So glad you have a great outcome.

By Donna 1 year ago
@cindyflo I’m so happy you had such positive results with your treatment and tests. I am also taking the same hormone blocker since November so if you have any questions about side effects let me know. Mine have been minimal (dryness and some night sweats).

By Iamasurvi... 1 year ago
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New to the journey

First post and replies | Last post by Heyhay888, 1 year ago

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Support for Kids

First post and replies | Last post by aborniger, 1 year ago

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If you are a cancer patient, in remission, or a survivor and have kids between kindergarten and senior year of high school, I highly recommend Kesem. It's a free summer camp that is exclusively for kids whose parent(s) have been affected by cancer and it gives them a chance to have fun and be kids again, as well as connect with others who understand what they're going through at home. They also do fall and spring meetup days so kids can reconnect in between sessions and to bring other new families into the community. When I was diagnosed, my...

By aborniger 1 year ago

PinPointPatientRecruiting.com

First post and replies | Last post by Buttercup, 1 year ago

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PinPointPatientRecruiting.com is looking for participants in a study. You can email Brooke Benford at brooke@pinpointrecruiting.com for information and to see if you qualify for the current study they are looking for participants. I did not qualify, but thought I'd pass this along to others who might be interested in checking it out. Since my type is so rare, I am not surprised...but you never know! HAPPY MARCH 1ST!!!

By Buttercup 1 year ago

Almost 11 years!

First post and replies | Last post by momoftwo, 1 year ago

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First post and replies | Last post by janedoe7, 1 year ago

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First post and replies | Last post by Helen, 1 year ago

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First post and replies | Last post by jleeh, 2 years ago

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Breast Cancer Awareness Month is bothering me

First post and replies | Last post by momoftwo, 2 years ago

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Lumpectomy vs mastectomy

First post and replies | Last post by janedoe7, 2 years ago

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