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This is a new adventure

First post and replies | Last post by dld, 1 year ago

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I just found out that I have breast cancer last Monday. I have had a mammogram, sonogram, and biopsy. They think it is DCIS, but KU is going to do further testing in 2 weeks. I had a mammogram in February and it came back normal, though I do have very dense breast tissue. 2 weeks seems a long time to wait. I have been exercising and eating healthy, but I am waking up every hour after 12:30 a.m. I am 66, but still work as a para with special needs children. I still do my grateful journal and right now I feel like I am in a holding pattern until ...

By dld 1 year ago
The waiting game can be the hardest part of this journey you are embarking on. You are not alone! I am so glad you came here and voiced your thoughts so others can support you. I will say, through my experience, the doctors will make things go faster if they see a need for it. I had to wait a month to meet with the team of doctors to go over the plan. You've got this!

By 23byebyeb... 1 year ago
@23byebyeboobies Thank you. While this is scary, Tuesday can not come fast enough! (My first appointment at KU)

By dld 1 year ago
Hope your followup appointment went well. If you have any questions, reach out on this platform to get help, be heard, or receive a virtual hug.

By Iamasurvi... 1 year ago
Start a 3 ring binder that you can keep EVERYTHING organized in (lab/xray/dr & Other appointments, people who have offered to help etc). It will help if you see multiple disciplines with this journey. Make a list of "feel good" things to do, etc, people you can contact for various things...like support, errands, rides, food, etc. A lot of people offer help in the beginning, but then as things progress you may forget who/what or be shy at requesting help. IT'S OK TO ASK FOR HELP!!! When you find out a treatment plan, go over who has off...

By Buttercup 1 year ago
I had a DXM on July 3rd with reconstruction. Sentinel lymph nodes were taken from my left and they are okay. Plastic surgeon appointment this week, oncologist next week. Slowly getting the drains removed. I will not know the next steps until the path report on the 22nd. My oncologist did say the margins seemed clear. Taking it one day at a time. Pain is not too bad. Naps are very nice. My Peace Out Recliner is a God send. My husband, family, and coworkers have been very supportive. Just remembering to breathe. 🙂

By dld 1 year ago
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Hurry up and wait 🙁

First post and replies | Last post by Kpitzer02, 1 year ago

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Side effects of Letrozole

First post and replies | Last post by Debi, 1 year ago

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First post and replies | Last post by summers72983, 1 year ago

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My Cancer Journey As Mom

First post and replies | Last post by thilner2015, 1 year ago

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HER2 Triple Positive Breast Cancer My husband I just sat our 9-year-old down and told her. We explained what would happen and what toexpect during my treatment. We tried to mentally prepare for my change in appearance as well. Idecided the one thing I could control was to get ahead of my hair falling out, so when it started to fallout I had my husband and daughter help me shave my head.My husband had to take over cleaning, cooking, soccer practice, and friends had to drive my daughter toschool.My support system has always been wonderful. ...

By thilner20... 1 year ago

First post and replies | Last post by janedoe7, 1 year ago

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Navigating Breast Cancer with Kids

First post and replies | Last post by aborniger, 1 year ago

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Julie Rudman recently asked for advice on how to navigate breast cancer with kids for an upcoming podcast she's a part of. I wanted to share the answers I gave to her here as well, in case anyone else would find them useful. Mamas, you are stronger than you ever thought possible. Sending healing vibes to you all! Initial Communication and Coping How did you explain your cancer diagnosis to your children, and how did they handle it? My kids were pretty young when I was diagnosed. My son was about to start kindergarten and my daughter wa...

By aborniger 1 year ago

Painful Sex Treatment Options

First post and replies | Last post by Jenny_marshall, 1 year ago

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Hi! For those of you that have problems with painful sex, especially due to a lack of estrogen (I had a hysterectomy at 37 years old and loosing all of that Estrogen caused a lot of dryness and vaginal pain with sex). I wanted to share info on the Mona Lisa Procedure. It helps to remove stenotic (badly scarred) tissue in the vagina. This scarred tissue makes sex very painful. I got the Mona Lisa procedure to remove this tissue. It was amazing! I also now do vaginal estrogen on a limited basis. These have truly helped with my sex life. Unfortuna...

By Jenny_mar... 1 year ago

First post and replies | Last post by Jenny_marshall, 1 year ago

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New to the Club

First post and replies | Last post by janedoe7, 1 year ago

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