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Hurry up and wait 🙁

First post and replies | Last post by Kpitzer02, 1 year ago

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Hi everyone! I'm so glad to have found this website and resource. I'm 41, mom of 5 kids (we had twins at the end lol), I'm in nursing school, I found a lump, waited 3 weeks for mammogram and ultrasound at KU. I was just diagnosed with DCIS, grade 3, lots of comedo necrosis, ER- and PR-, multiple masses that hurt (I don't know why) on my right breast. I was trying to fit in a double mastectomy during my school break, that is only 2 weeks long, but I was trying to stretch it into about 4 with my school's approval. I met with a surgeon at KU, only...

By summers72... 1 year ago
You poor thing! First of all, I'm sorry you had to wait 3 weeks for a mammogram after finding a lump. That is agony! Second, I'm confused about what the lumps are because I wouldn't think you could feel DCIS, but I'm no expert. Do you have multiple locations of DCIS? (Still, I don't get it....) Third, did your doctor mention chemo, or just the PA (who probably needs to stay in their lane)? Don't get ahead of yourself about chemo, or about anything, really. That is definitely one thing I learned. I had a kind of breast cancer that can be associa...

By janedoe7 1 year ago
@janedoe7 thank you so much for your thoughtful reply; and just validating my feelings! Yeah, I don't get it about the lumps and DCIS either. My doctor did mention chemo, and it will be warranted if the mastectomy pathology comes back as invasive; but again I'm feeling like it will due to the size of the tumors. From mychart: There are multiple masses and non-mass enhancement within the upper outer quadrant of the right breast, 2 masses of which contain HydroMARK tissue markers and are consistent with the biopsy-proven malignancy. This proce...

By summers72... 1 year ago
Yes, but I just googled it, and DCIS can be much larger than I thought. It’s hard to tell what “this process” is referring to above, because multiple areas are mentioned. Is it possible “this process” is referring to the whole area, which includes some masses (that have been sampled and have markers in them) as well as the non-mass enhancement, which could be nothing?

By janedoe7 1 year ago
@janedoe7 yeah that's a good point. I just know I can feel them. What is your breast cancer story btw if you don't mind sharing?

By summers72... 1 year ago
Different from yours. Post-menopausal, Stage 1, no symptoms, found at my annual mammogram. Treated with lumpectomy, radiation and hormone blockers. I had a few frustrating and painful side effects from treatment but otherwise was best case scenario and I’m super grateful about that. I did genetic testing and everything was negative. Again, super grateful.

By janedoe7 1 year ago
@janedoe7 thank you for being so interactive on here!! I'm sure lots of people appreciate it :). I know I do!

By summers72... 1 year ago
Hello! I am so sorry you are going through this. I was diagnosed at the beginning of the school year and I am a teacher. I felt the stage you are in was BY FAR my most stressful part of the process. Feel free to reach out 816-509-3972 and we can talk details. When I wanted to have surgery my surgeon was out of town too so I switched and it was fine. I was at KU as well. I had 8 tumors and transferred hospitals. As long as you are not triple negative, 6 weeks will be fine, but talk to your team. It took me awhile to get the mammogram, a...

By Kpitzer02 1 year ago
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Side effects of Letrozole

First post and replies | Last post by Debi, 1 year ago

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First post and replies | Last post by summers72983, 1 year ago

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My Cancer Journey As Mom

First post and replies | Last post by thilner2015, 1 year ago

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HER2 Triple Positive Breast Cancer My husband I just sat our 9-year-old down and told her. We explained what would happen and what toexpect during my treatment. We tried to mentally prepare for my change in appearance as well. Idecided the one thing I could control was to get ahead of my hair falling out, so when it started to fallout I had my husband and daughter help me shave my head.My husband had to take over cleaning, cooking, soccer practice, and friends had to drive my daughter toschool.My support system has always been wonderful. ...

By thilner20... 1 year ago

First post and replies | Last post by janedoe7, 1 year ago

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Navigating Breast Cancer with Kids

First post and replies | Last post by aborniger, 1 year ago

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Julie Rudman recently asked for advice on how to navigate breast cancer with kids for an upcoming podcast she's a part of. I wanted to share the answers I gave to her here as well, in case anyone else would find them useful. Mamas, you are stronger than you ever thought possible. Sending healing vibes to you all! Initial Communication and Coping How did you explain your cancer diagnosis to your children, and how did they handle it? My kids were pretty young when I was diagnosed. My son was about to start kindergarten and my daughter wa...

By aborniger 1 year ago

Painful Sex Treatment Options

First post and replies | Last post by Jenny_marshall, 1 year ago

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Hi! For those of you that have problems with painful sex, especially due to a lack of estrogen (I had a hysterectomy at 37 years old and loosing all of that Estrogen caused a lot of dryness and vaginal pain with sex). I wanted to share info on the Mona Lisa Procedure. It helps to remove stenotic (badly scarred) tissue in the vagina. This scarred tissue makes sex very painful. I got the Mona Lisa procedure to remove this tissue. It was amazing! I also now do vaginal estrogen on a limited basis. These have truly helped with my sex life. Unfortuna...

By Jenny_mar... 1 year ago

First post and replies | Last post by Jenny_marshall, 1 year ago

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New to the Club

First post and replies | Last post by janedoe7, 1 year ago

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I'm a two-time 4-year breast cancer survivor

First post and replies | Last post by YoliV5590, 1 year ago

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