Notifications

Clear all

Forum

Page 1 / 6 Next

Title

Views

Posts

First post and replies | Last post by User2008, 6 days ago

122

5

Hi! I’m a 17 year survivor. Had chemo, double mastectomy, implant reconstruction and radiation. I have pain in my chest near my sternum every morning when I wake up. It goes from front to back. It goes away during the morning but comes back early the next morning. Wakes me up and makes it hard to sleep. I’ve seen multiple drs including a cardiologist, plastics, rheumatologist, pain management and did PT. No one could help. Has anyone experienced anything like this and could share some insights on what they figured out? I am not on any post c...

By User2008 1 month ago
I’m sorry you are experiencing this. I wonder if it is an effect of radiation, since we know that there can be late effects. But I’m also wondering if there is any chance it could be nighttime heartburn? You mentioned that it bothers you in the night (when you’re lying down) and goes away in the morning (when you’re standing up.) Have you looked into acid reflux or GERD? I hope you get relief!! That’s not anyone’s favorite way to start the day!

By janedoe7 1 month ago
@janedoe7 Thank you for your reply. I have tried heartburn meds but to no avail. It is a different pain from a burning too. Feels like what I imagine if someone were trying to push so hard on my chest to crack my sternum but I’ve had no trauma there either…besides the historical BRCA stuff.

By User2008 1 month ago
I am a 2 time breast cancer survivor (1992 and 1998). First time lumpectomy w/iridium implants for 36 hours/ 29 nodes taken from right arm pit, followed with 28 external rad treatments. 2nd time (1998) had bilateral mastectomy with an attached TRAM FLAP (before microsurgery available). Never did chemo. In the last 5 years I started experiencing rib pain under the radiated breast area that sometimes extends out as far as my side. No doctor has been able to explain it. Hypothesis possibilities are rib degeneration from all the radiation to ...

By Buttercup 6 days ago
@buttercup thank you for your reply and support! I’m sorry to hear of your pain and the frustration concerning drs overlooking the pain. My pain at least goes away during the day so I am fortunate it doesn’t affect my falling asleep. Always a bright side! Thanks again and best wishes to you!

By User2008 6 days ago
view all posts

This is a new adventure

First post and replies | Last post by dld, 6 days ago

125

6

Hurry up and wait 🙁

First post and replies | Last post by Kpitzer02, 2 months ago

88

8

Side effects of Letrozole

First post and replies | Last post by Debi, 2 months ago

67

3

First post and replies | Last post by summers72983, 2 months ago

166

14

My Cancer Journey As Mom

First post and replies | Last post by thilner2015, 2 months ago

36

1

HER2 Triple Positive Breast Cancer My husband I just sat our 9-year-old down and told her. We explained what would happen and what toexpect during my treatment. We tried to mentally prepare for my change in appearance as well. Idecided the one thing I could control was to get ahead of my hair falling out, so when it started to fallout I had my husband and daughter help me shave my head.My husband had to take over cleaning, cooking, soccer practice, and friends had to drive my daughter toschool.My support system has always been wonderful. ...

By thilner20... 2 months ago

First post and replies | Last post by janedoe7, 2 months ago

65

8

Navigating Breast Cancer with Kids

First post and replies | Last post by aborniger, 2 months ago

44

1

Julie Rudman recently asked for advice on how to navigate breast cancer with kids for an upcoming podcast she's a part of. I wanted to share the answers I gave to her here as well, in case anyone else would find them useful. Mamas, you are stronger than you ever thought possible. Sending healing vibes to you all! Initial Communication and Coping How did you explain your cancer diagnosis to your children, and how did they handle it? My kids were pretty young when I was diagnosed. My son was about to start kindergarten and my daughter wa...

By aborniger 2 months ago

Painful Sex Treatment Options

First post and replies | Last post by Jenny_marshall, 2 months ago

65

1

Hi! For those of you that have problems with painful sex, especially due to a lack of estrogen (I had a hysterectomy at 37 years old and loosing all of that Estrogen caused a lot of dryness and vaginal pain with sex). I wanted to share info on the Mona Lisa Procedure. It helps to remove stenotic (badly scarred) tissue in the vagina. This scarred tissue makes sex very painful. I got the Mona Lisa procedure to remove this tissue. It was amazing! I also now do vaginal estrogen on a limited basis. These have truly helped with my sex life. Unfortuna...

By Jenny_mar... 2 months ago

First post and replies | Last post by Jenny_marshall, 2 months ago

86

4

Page 1 / 6 Next