Recent Posts by
The Breast Cancer Club
A feed is a constantly updating stream of content often displayed in reverse chronological order, or newest to oldest.
Directions: Below you will find all the posts that have been made on the Forum pages since launch in June 2024, listed from newest to oldest. Click on the title to read a post in its entirety or to reply to it. Posts for the Sunshine page and Bulletin Board are not included in this feed, as they are already listed newest first.
Recent Posts
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RE: Wound Healing at the T-Juncture
By Iamasurvivor, 1 week ago
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| Good idea and good luck! | ||
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RE: Wound Healing at the T-Juncture
By Creativewithcancer, 1 week ago
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| @iamasurvivor It is interesting, because that is what she thought two weeks ago, and sent me straight to the plastic surgeon where they said no. I think I will just re-start that conversation now that... | ||
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RE: Wound Healing at the T-Juncture
By Iamasurvivor, 1 week ago
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| Sure you could each out to oncology surgeon too, especially if they’re willing to see you right away. And if they think you need surgery/repair they can communicate with your plastic surgeon to expedi... | ||
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RE: Wound Healing at the T-Juncture
By Creativewithcancer, 1 week ago
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| @iamasurvivor OK -- will do. I send photos usually once per week as well, so I've been staying on them, but maybe I need to go back to the oncology surgeon to see what she thinks? | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By Iamasurvivor, 1 week ago
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Treatment Decisions
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| Thanks for sharing. Thinking of you and wishing you complete healing! | ||
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RE: Wound Healing at the T-Juncture
By Iamasurvivor, 1 week ago
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| Sorry to hear what you’re going through. I also had bilateral oncoplasty. I would not wait but rather call the surgeon’s office and insist upon seeing the surgeon. Reiterate to them on the phone that... | ||
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Wound Healing at the T-Juncture
By Creativewithcancer, 1 week ago
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| Hi everyone! I had my bilateral lumpectomies with reduction and lift (oncoplasty) on March 6 at KU. I am having an issue with my incision at the t-juncture (where the three incisions come together und... | ||
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& personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By Janymiller, 2 weeks ago
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Treatment Decisions
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| I had a nipple sparing bilateral mastectomy in 2017 at KU. I had expanders placed and had implants about 6 weeks later. Im negative for BRCA gene, but my breast surgeon did tell me that my nipples w... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By KeepChanging, 2 weeks ago
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Treatment Decisions
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| Hi @holly For what its worth I am scheduled for my NSM to expanders at KU next week as well. I am BRCA2+. My surgery will be risk-reducing due to the mutation rather than for cancer treatment howev... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By S2425, 2 weeks ago
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| Hi @holly, I had a double mastectomy at KU that was nipple sparing, and I had tissue expanders to prepare for implants. I didn’t have chemo or radiation. It has been over a year since my reconstructiv... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By momoftwo, 2 weeks ago
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| Hi Holly, First off, you don't ever have to apologize in this group. We are here to hold each other up. You can be all over the place or laser-focused. We get it and want to help! I was BRCA negative,... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By LWilliams816, 2 weeks ago
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| Hi Holly! I had a nipple sparing DMX back in early October and opted for reconstruction with silicone implants. During the surgery, they installed expanders, which are sutured to your chest wall. I c... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By jleeh, 2 weeks ago
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Treatment Decisions
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| Hi Holly, I was preventative dmx with immediate DIEP at KU. I can't talk about the radiation side but I would say DIEP is totally worth it. I am open to any question you have - the first 5 days are ha... | ||
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Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By Holly, 2 weeks ago
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Treatment Decisions
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| I am scheduled to have a nipple sparing DMX on 4/15. I am BRCA2+ and just finished chemo for HR+HER2-. I will have 20 rounds of radiation. I have complete peace about the DMX part as screening didn’t ... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 2 weeks ago
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| @jleeh Would appreciate any advice you're willing to share for sure. | ||
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RE: HI! Previvor and new Mom just moved back
By jleeh, 3 weeks ago
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| @keepchanging I’m almost 2 years out from preventative double mastectomy. The fear does creep in as you get closer. I lost my mom recently to breast cancer and before she passed she told me that doing... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 3 weeks ago
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| @janedoe7 A list of reasons really but on the short list; scan anxiety and timing. Timing and health more than anything. I'm as "fit" as I'm going to be and my kids aren't dependent on me physically ... | ||
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RE: HI! Previvor and new Mom just moved back
By janedoe7, 3 weeks ago
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| @keepchanging, good luck with your double mastectomy surgery! I was curious what tipped the scale for you from monitoring to surgery. Were you waiting for the right time? Have you had one too many sca... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 3 weeks ago
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| Hi Hailey. Previvor here too. Living the dream with a couple of rogue gene mutations. 😉 I've been monitoring for a couple of years now, planning for DMX surgery in a couple of weeks through KU. ... | ||
