Recent Posts by
The Breast Cancer Club
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Directions: Below you will find all the posts that have been made on the Forum and Clubhouse pages since launch in June 2024, listed from newest to oldest. Click on the title to read a post in its entirety or to reply to it. Posts for the Sunshine page and Bulletin Board are not included in this feed, as they are already listed newest first.
You are viewing recent posts in the Clubhouse. To view recent posts in the Forum, toggle over in the tab above.
Recent Posts
Posts with their shortened content | ||
RE: Advent vs.KU
By jleeh, 2 days ago
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Clubhouse
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@screaminmimi I have to say the nurse navigators are excellent and helping getting this process going. | ||
RE: Advent vs.KU
By Screaminmimi, 2 days ago
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Clubhouse
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@kpiitzer02 thank you | ||
RE: Advent vs.KU
By Kpitzer02, 2 days ago
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Clubhouse
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@screaminmimi Feel free to call if you want to talk! Happy to help! 816-509-3972 | ||
RE: Advent vs.KU
By Screaminmimi, 2 days ago
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Clubhouse
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@kpiitzer02 thanks trying to get up the courage to dive in | ||
Seeking Fellow Roller Skaters
By Gr8fu11, 2 days ago
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Clubhouse
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Hi! I love to roller skate and am wondering if anyone is interested in meeting up at adult skate sessions? Thanks! | ||
RE: Advent vs.KU
By Kpitzer02, 3 days ago
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Clubhouse
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I got diagnosed in Sept 21 and I started testing and appt with Advent. I liked all, but the oncologist was inexperienced so I did a second opinion at KU. It was a great decision for me. It did prol... | ||
RE: Advent vs.KU
By Thriving7, 6 days ago
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Clubhouse
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Hi! I was diagnosed with Triple Negative in February 2015 and received my treatment through HCA and switched to KU in 2016. I switched because of the research Dr Sharma has done and continues to do r... | ||
RE: Advent vs.KU
By Screaminmimi, 6 days ago
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Clubhouse
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@jleeh Thank you I am going to look into it | ||
RE: Advent vs.KU
By jleeh, 6 days ago
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Clubhouse
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I would definitely switch. KU has been amazing for my mom. My mom sees Dr. Crane and his staff is wonderful. Her first go round of cancer treatment was at Sarah Cannon. When her cancer returned we swi... | ||
RE: Advent vs.KU
By Screaminmimi, 7 days ago
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Clubhouse
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@janedoe7 I think so. I had triple negative stage 3 diagnosed June of 2022. Had dmx that Feb. Finished treatment with Advent, had diep flap reconstruction through KU Nov 2023. Very happy with that. No... | ||
RE: Advent vs.KU
By janedoe7, 1 week ago
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Clubhouse
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Hi, @screaminmimi. Can you tell us more about your situation? Where did you get your treatment, and where are you thinking of switching to and why? I am wondering if some of your message got cut off. ... | ||
Advent vs.KU
By Screaminmimi, 1 week ago
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Clubhouse
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Is it worth it to switch after you're done with treatment | ||
RE: Breast Cancer Awareness Month is bothering me
By momoftwo, 1 month ago
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Clubhouse
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@janedoe7 It sounds like you were able to flip the negative thoughts and see the hopeful intention of support. I know some businesses pink wash, but many genuinely want to bring awareness. I'm glad yo... | ||
RE: Breast Cancer Awareness Month is bothering me
By momoftwo, 1 month ago
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Clubhouse
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@buttercup You are a blessing! Thank you for your post : ) | ||
RE: Breast Cancer Awareness Month is bothering me
By Buttercup, 2 months ago
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Clubhouse
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I was first diagnosed at age 39 in 1992. The drs knew they didn't have a chemo to use on my type but tried radiation. I had a lumpectomy done and 13 glass rods in the breast for 36 hours, then remov... |
You are viewing recent posts in the Forum. To view recent posts in the Clubhouse, toggle over in the tab above.
Recent Posts
Posts with their shortened content | ||
Almost 3 years since diagnosis
By Iamasurvivor, 2 weeks ago |
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February 2025 will mark 3 years since my breast cancer diagnosis. KU Med continues to provide me with excellent care and follow up. I completed over a year of treatment at KU Med. All my doctors and... | ||
RE: Urinary tract infections
By SharonT, 1 month ago
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Effects on your body
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Here is a follow up. I saw my gynecologist this week and she gave me some choices for preventing urinary tract infections. One choice was an estrogen cream. She said estrogen cream is considered safe ... | ||
Nipple Tattoo Artist
By janedoe7, 1 month ago |
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A navigator at St. Luke's says this woman does amazing nipple tattoos: Kara Gutierrez (owner/artist) Spot on Beauty 229 NW Blue Parkway, Ste. B. Lee's Summit, MO 64063 (318) 550-1824 @karaspotonbeau... | ||
Urinary tract infections
By SharonT, 1 month ago
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Effects on your body
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I have had it up to here with urinary tract infections! I couldn't understand why I was getting them until I was talking to another survivor who had the same problem and she said it was caused by horm... | ||
Kansas City therapists with experience working with cancer patients
By janedoe7, 1 month ago
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Psychotherapists
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Clara Sainte: clarasainte12@gmail.com, 816-444-5511 ext 109 Anne Becker-Schutte: 816-463-4365 Tara Tooley: 913-347-5486 | ||
After BC Diagnosis...Getting back to healthy and staying healthy
By Buttercup, 1 month ago |
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I'm a 2 time breast cancer survivor and I've known Sami since 2004 as we connected in the Young Survival Coalition group here in KC. She is dedicated to helping people after a cancer diagnosis and wi... | ||
RE: Neuropathy from mastectomy
By Juice Lady, 2 months ago
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Effects on your body
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@ironmom5 Hi I am sorry you are experiencing discomfort. I am 12 years out this month. I regained feeling under my arm after about 2 years. I still get neuropathy in my feet, but all of it has les... | ||
RE: Neuropathy from mastectomy
By Ironmom5, 2 months ago
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Effects on your body
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I had 10 lymph nodes taken out of my right armpit area after a double mastectomy, and I can completely relate. I decided not to do reconstruction, so I wear a cami under my clothes. It often feels unc... | ||
RE: Neuropathy from mastectomy
By Buttercup, 2 months ago
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Effects on your body
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Hi! I had 36 hours of iridium implants in the right breast after a lumpectomy, followed with 28 external rad treatments...back in 1992 when probably a lot more rads spread than with the direct beams ... | ||
Neuropathy from mastectomy
By Lear0411, 2 months ago
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Effects on your body
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Anyone found something that works for neuropathy from the nerve damage from the mastectomy? I’ve tried so many things….nothing works. Clothes under that arm are so uncomfortable. | ||
Lymphedema Help/Training
By Buttercup, 2 months ago
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Other
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University of Iowa is looking for breast cancer survivors with lymphedema problems and treatments who have been managing it at least 1 yr with Complete Decongestive Therapy and would like free trainin... | ||
RE: Dr. Christa Balanoff at KU (Indian Creek campus)
By Iamasurvivor, 3 months ago
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Breast surgeons
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I agree Dr Balanoff is very compassionate and attentive to your needs. Glad you are doing well! What an emotional rollercoaster it has been! | ||
Second Nature Breast Care Boutique
By Julie T., 3 months ago |
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Second Nature started as a mother/daughter team of after breast surgery consultants working with women who have had a mastectomy, lumpectomy, reconstruction or implants. Second Nature offers personal... | ||
RE: Nipple sparing surgery
By janedoe7, 3 months ago |
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It's obviously not the same thing as a mastectomy, but I've had a breast lift so my nipples have also been removed and then put back. I wore a front-zip bra like they told me to for about a week, but ... | ||
RE: Nipple sparing surgery
By Gwoodhood, 3 months ago |
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Hi there, I had a mastectomy a year ago w reconstructive surgery. You will want bras that hook or snap or Velcro in front. Tight fitting feels better. Also I suggest getting button down shirts/PJ’s an... |