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The Breast Cancer Club

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RE: HI! Previvor and new Mom just moved back  

By sjherman, 22 hours ago

Forum Forum
  Hi Hailey! I had never heard the term "Previvor" before, but I am a Previvor as well, with no known breast cancer genes. I am also from Chicago. I loved raising my children in KC. Congrats on your ...
RE: HI! Previvor and new Mom just moved back  

By Juliesfan18, 2 days ago

Forum Forum
  Hi Hailey, and welcome back to KC! Being a new mom is overwhelming for sure and I hope you’re finding time for yourself, if only to catch up on sleep! My story is somewhat similar to yours; my mom pa...
RE: HI! Previvor and new Mom just moved back  

By madelinebenjamin, 2 days ago

Forum Forum
  Hi! I am a survivor, but had originally planned to be a previvor. 😉 KU is great and where I went for monitoring pre-cancer, during cancer and post. I have the BRCA mutation and one little one ...
HI! Previvor and new Mom just moved back  

By Hailey Allen, 2 days ago

Forum Forum
  Hi everyone!! My name is Hailey. I am in my early 30s and I am a Previvor who just moved back to the Kansas City area after a decade in Chicago. My mother had metastatic breast cancer and passed away ...
The Balm Box  

By lbenditt, 3 days ago

  The Balm Box was founded by six-time cancer survivor Liz Benditt to provide comfort and practical support for people undergoing cancer treatment. Created from Liz’s personal experience and feedback fr...
RE: July 28th Gathering/Walk at Oak Park Mall  

By Buttercup, 1 week ago

Forum Forum
  Just found out this evening that I will be having major surgery on my Right Shoulder on 2/25. So sad that I will miss the Walk that Saturday. 🙁 Please keep me posted when the next one is scheduled ...
RE: Anyone Else with Bilateral Breast Cancer?  

By Fiercelyfiesty, 1 week ago

Forum Forum
  @creativewithcancer I agree! I have been with Dr Khan for a year now, he is wonderful! As is Stephanie Lefever and Oanh in his office. (Truly they all are but these are the three I see the most). If ...
RE: Anyone Else with Bilateral Breast Cancer?  

By momoftwo, 1 week ago

Forum Forum
  @creativewithcancer I'm not sure...Mine was peppered throughout both breasts like sand granules, so I didn't have an option for a lumpectomy.
RE: Anyone Else with Bilateral Breast Cancer?  

By momoftwo, 1 week ago

Forum Forum
  @creativewithcancer I have two daughters also. My genetic testing came back negative for BRACA so I was relieved. Yes, I'd suggest you message the nurse for the results. Sometimes things fall through ...
RE: Anyone Else with Bilateral Breast Cancer?  

By Creativewithcancer, 1 week ago

Forum Forum
  @lms7663 Wow -- that's so good to know! Thank you!
RE: Anyone Else with Bilateral Breast Cancer?  

By Lms7663, 1 week ago

Forum Forum
  @creativewithcancer I’m not that knowledgeable but I did learn a lot more from personal experience than I ever thought I would want to know. lol. Dr. Kahn is my oncologist and he’s wonderful! I would...
RE: Anyone Else with Bilateral Breast Cancer?  

By Creativewithcancer, 1 week ago

Forum Forum
  @lms7663 Wow! Amazing you are so knowledgeable. The DCIS is stage 0 and the IDC is stage 1 and grade 1. So, that's all good news. I'm hoping the genetic testing comes back OK. It is HER2-. I'm making ...
RE: Anyone Else with Bilateral Breast Cancer?  

By Creativewithcancer, 1 week ago

Forum Forum
  @ironmom5 Oh gosh, sounds difficult for sure! I am so grateful for you sharing. I will reach out!
RE: Anyone Else with Bilateral Breast Cancer?  

By Buttercup, 2 weeks ago

Forum Forum
  Sorry so late in hopping on this... BEEN A BUSY MONTH! I had breast cancer twice in the right breast, six years apart... 1992 and 1998. Was using KU, Dr William Jewell was my surgeon. The first tim...
RE: Anyone Else with Bilateral Breast Cancer?  

By Ironmom5, 2 weeks ago

Forum Forum
  I had lobular on the left and IDC on the right. They did not discover the lobular cancer until my bilateral mastectomy. It just looked like “salt on the screen.” I had 20 rounds of chemo and 28 rounds...
RE: Anyone Else with Bilateral Breast Cancer?  

By Lms7663, 2 weeks ago

Forum Forum
  @creativewithcancer Before my cancer dx I was an RN for a breast cancer surgeon. Treatments are so amazing now. I know you’ll going to do great. If you’re comfortable sharing: Who is your oncologist...
RE: Anyone Else with Bilateral Breast Cancer?  

By Creativewithcancer, 2 weeks ago

Forum Forum
  @mirkat63 Also, they told me the chances of recurrance are the same between the two surgeries -- is that not correct?
RE: Anyone Else with Bilateral Breast Cancer?  

By Creativewithcancer, 2 weeks ago

Forum Forum
  @mirkat63 They didn't and I forgot to ask. Maybe I'll message the nurse? I do know the chances are somewhat low that genetics will be involved but I think I'll feel more settled once I hear about that...
RE: Anyone Else with Bilateral Breast Cancer?  

By momoftwo, 2 weeks ago

Forum Forum
  @creativewithcancer I wanted the double mastectomy because I didn't want to worry about it later on. At first, they said they wouldn't remove healthy breast tissue. I said I WANT it removed. Then they...
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