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Directions: Below you will find all the posts that have been made on the Forum and Communities pages since launch in June 2024, listed from newest to oldest. Click on the title to read a post in its entirety or to reply to it. Posts for the Sunshine page and Bulletin Board are not included in this feed, as they are already listed newest first.
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RE: Lumpectomy vs mastectomy
By YoliV5590, 10 hours ago |
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| Hello and first of all, I'm so sorry you're going through this. Hopefully you find this forum of women helping to answer questions and provide support, comforting. I had a very similar situation of D... | ||
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RE: Lumpectomy vs mastectomy
By janedoe7, 4 days ago |
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| @Ironmom5, the lobular in your right breast is a good point! I don't often second-guess my decision to do a lumpectomy, but when I do, that's exactly what I worry about. I had lobular in my left breas... | ||
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RE: Lumpectomy vs Mastectomy
By momoftwo, 4 days ago |
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| Hi @pkcg , Sending good wishes to you!! I was diagnosed with Ductal Carcinoma Insitu, but it was like sand granules peppered throughout my breasts, so I had a double mastectomy. I was happy to have t... | ||
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RE: Lumpectomy vs mastectomy
By Ironmom5, 4 days ago |
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| It is definitely a hard decision, and it's wonderful that you are reaching out for advice and support. I am HER2 and estrogen positive, and I had a double mastectomy in late May. At the time, I though... | ||
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Scared of the “C” word
By FOF101, 5 days ago
Forum
Effects on my children
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| I had a really hard time telling my high school daughter that I had breast cancer because we are all so scared of the “C” word. I knew she would freak out so I stayed really strong when I told her. I ... | ||
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I chose a lumpectomy
By FOF101, 5 days ago |
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| I also was diagnosed with stage 1 ductal carcinoma and I had a choice between a lumpectomy or a mastectomy. I did the genetic testing to see if I had the BRCA gene and that was going to make my decisi... | ||
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RE: Lumpectomy vs mastectomy
By Gwoodhood, 6 days ago |
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| Hello, it’s a hard decision and I can relate. I had the option 1 year ago and ultimately decided to do a double mastectomy for a few key reasons: 1. I heard it was had to do a mastectomy later if you ... | ||
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RE: Lumpectomy vs mastectomy
By PKCG, 7 days ago |
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| My sister had a rough time with her mastectomy & then reconstruction . And yes, the possibility of an easier recovery with the lumpectomy & not having to miss as much work makes this option so... | ||
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RE: Lumpectomy vs lumpectomy
By janedoe7, 1 week ago |
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| I'm sorry to hear that you've been diagnosed with breast cancer. May I ask what caused you to rethink your choice? Did you speak to someone who had a rough experience with a mastectomy? Are you concer... | ||
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Lumpectomy vs mastectomy
By PKCG, 1 week ago |
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| Hello- I recently was diagnosed with invasive ductal CA. I am estrogen/progesterone + & HER2 -. Genetic testing results are still pending. I have 3 small lesions in the same quadrant of my L breas... | ||
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Deep Inspiration Breath Hold
By janedoe7, 1 week ago
Forum
Radiation
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| If you are having radiation on the left breast, you will probably be instructed to take a deep breath and hold it during treatment to move the breast away from the heart and limit the amount of radiat... | ||
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Your neighborhood hospital
By janedoe7, 1 week ago
Forum
Menorah Medical Center
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| I mean this mostly in a positive way: Menorah feels like your neighborhood hospital. It's not huge and impersonal. You feel like the people who work there know you and care about you. I was in the bu... | ||
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RE: Open Book
By SharonT, 1 week ago |
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| I'm so happy for you, and I felt the same way. I could not believe how many people sent cards or dropped off a little gift or food. To be honest, I probably wouldn't have done the same thing if the ro... | ||
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Dr. Larson at KU Med
By KCSP4, 1 week ago
Forum
Breast surgeons
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| I had a great experience with Dr. Larson at KU Med for my lumpectomy with one lymph node removed. Dr. Freund was the surgeon who placed and removed my port and he was outstanding as well. | ||
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DR. JOHN SHOOK - Saint Luke’s Hospital
By FOF101, 2 weeks ago
Forum
Breast surgeons
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| Dr. Shook and his team are AMAZING! They organized all my appointments and were super helpful with any questions I had. Dr. Shook is one of the best in his field and I am grateful he did my surgery. I... | ||
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RE: Revamped My Lifestyle
By momoftwo, 3 days ago |
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| Thank you. I agree! Food manufacturers don't care about our health. We need to take good health into our own hands. | ||
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RE: Revamped My Lifestyle
By Iamasurvivor, 3 days ago |
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| That is great info and advice. I too have reduced processed foods and exercise and work on reducing stress. I believe all these things contribute to a healthier lifestyle and longer life for everyon... | ||
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Revamped My Lifestyle
By momoftwo, 3 days ago |
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| After I was diagnosed with DCIS, I started working with a health coach who guided me toward better lifestyle practices. I reduced my consumption of processed foods and started eating organic produce. ... | ||
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11 year survivor!
By momoftwo, 4 days ago
Community
Ductal carcinoma in situ
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| Today is my 11-year cancer-free anniversary! In some ways, it feels like forever ago; in other ways, it was like yesterday. As I type this, I am tearing up thinking about the day I received the news. ... | ||
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RE: DCIS
By momoftwo, 4 days ago
Community
Ductal carcinoma in situ
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| I completely understand the guilty feelings!! My surgeon didn't help by telling me I had the "garden variety breast cancer." I wanted to ask her if she had a double mastectomy, too! I was devastated! ... | ||
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Preparing for Flat Aesthetic Closure
By Helen, 2 weeks ago |
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| I highly recommend that work of Amanda Savage Brown, PH.D, LCSW and her book "Busting Free" It can be found on Amazon. Grief is one thing that I didn't think I would have after my mastectomy and didn'... | ||
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RE: How are you handling your high risk diagnosis?
By Helen, 2 weeks ago
Community
High risk for developing breast cancer
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| I handled my high risk breast cancer dx with a nipple sparing mastectomy after being monitored through mammographies, ultrasounds, and MRIs for about 5 years at St.Luke's high risk breast clinic. I ha... | ||
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Mostly a very good thing
By janedoe7, 3 weeks ago
Community
Alcohol Reduction
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| I stopped drinking entirely about two years ago after cutting back over about six months. I don't miss alcohol and I feel much better without it, but sometimes I do feel left out when everyone else is... | ||
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RE: Leawood
By Iamasurvivor, 1 month ago
Community
Johnson County
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| Thank goodness for modern medicine! So happy to hear of your great outcome! | ||
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Overland Pak
By naan05, 1 month ago
Community
Johnson County
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| I was diagnosed with Invasive Ductal Carcinoma stage 2 in September 2022. I had my mastectomy at KU Indian Creek in Overland Park. I had me Chemo at Advent Health. I opted to do my chemo at Advent Hea... | ||
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RE: Your support will mean the world to them ❤️
By Iamasurvivor, 1 month ago |
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| Beautifully written!!!! | ||
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Supporting from distance
By mir27, 2 months ago |
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| I found out about my mom's diagnosis when I was working at summer camp right before I left for college. I knew my mom was about to go through a battle that was both physically and emotionally grueling... | ||
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My first goal was to live past my credit card expiration...
By MindyLou, 2 months ago |
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| It sounds very strange to say that, I know. Around the time I was diagnosed (April 2017) I received a new credit card as mine was expiring. The expiration on my new VISA was 5 removed link For som... | ||
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