The Breast Cancer Clubhouse

A clubhouse is a common space where members of a club gather and socialize.

Directions: This is an informal space, a multipurpose room to be used as you like. Introduce yourself and tell us your story! Ask a question! Tell us what’s on your mind! As always, you may withhold your real name and other identifying details to protect your privacy. To write a post, click on “Start a New Post.” To reply to someone else’s post, click on its title.

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Clubhouse

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First post and replies | Last post by naan05, 5 months ago

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I was diagnosed with Invasive Ductal Carcinoma stage 2 in September 2022. I had my mastectomy at KU Indian Creek in Overland Park. I had me Chemo at Advent Health. I opted to do my chemo at Advent Health since they offered cold capping. I had my Radiation at KU main campus. I had a hysterectomy and reconstruction surgery at KU main campus.

By naan05 5 months ago

Your support will mean the world to them ❤️

First post and replies | Last post by Iamasurvivor, 5 months ago

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Supporting from distance

First post and replies | Last post by mir27, 5 months ago

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I found out about my mom's diagnosis when I was working at summer camp right before I left for college. I knew my mom was about to go through a battle that was both physically and emotionally grueling, but none of it happened in my world. I heard about her diagnosis on FaceTime and watched her ring her Survivor's Bell in a video sent in our family groupchat (and I missed about every test, radiation session, and surgery in between). This was the fight of my mom's lifetime, and I watched it through a phone screen in my freshman dorm room. That ...

By mir27 5 months ago

14 Year Male Survivor

First post and replies | Last post by Bmiller85, 6 months ago

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Hello everyone, I am 38 years old out of Prairie Village, I was diagnosed at 24 years old after having my lump for 7 years. Was always told it was a calcium build up and it was nothing to worry about. I started the malebreastcancerhappens.org organization to help men not feel alone like I was when you hear the words, "You have breast cancer." I am always here to chat and answer questions for anyone!

By Bmiller85 6 months ago

Anniversary of the diagnosis

First post and replies | Last post by RandyL, 6 months ago

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As the one year anniversary of my wife’s breast cancer is here it is important to reflect on how far we’ve come. Let your spouse take the lead if they want to recognize this milestone or not. The diagnosis of breast cancer can be a wedge in a relationship or can bring couples together. I am happy that this diagnosis brought us closer together and think it is critically important to be supportive and present for your spouse. Cancer diagnosis and treatment is a roller coaster ride and as long as you stay on the ride together, you can get through ...

By RandyL 6 months ago

Community is important

First post and replies | Last post by AO107, 6 months ago

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When my mom got diagnosed with breast cancer it was the hardest thing for me to hear. The woman I look up to, my best friend, my hero, my mom, and hearing that she was sick was heart shattering. The C word, cancer, is a scary word because you always think of the worse case scenario, not knowing what the future will look like. I had a difficult time right after hearing about my mom’s diagnose, and a really hard time watching her become sick. But, the support we had in our community was amazing, between my friends, teammates, teachers, coaches, ...

By AO107 6 months ago

ILC in 2011 at age 40

First post and replies | Last post by janedoe7, 6 months ago

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Being Latina and diagnosed, I felt like I had no community

First post and replies | Last post by YoliV5590, 6 months ago

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When I was diagnosed, I felt the world around me crashing. No one in my family had ever been diagnosed with cancer. I didn't hear this being talked about in my community, so how was I "the unlucky one"? I knew of only 1 other Latina who had breast cancer. She'd been sick for year; chemo treatment, test drugs, clinical trials, and nothing was helping her. Although my friend opened up to me, she was very private and also said "we as Latinas just don't talk about this much". We had good conversations about why that was and she felt that admittin...

By YoliV5590 6 months ago

First post and replies | Last post by naan05, 6 months ago

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The morning of August 18th 2022 I felt a lump on my right breast. I immediately went to my OBYN's office to get it checked. They thought it was a cyst but to put my mind at ease sent me to get a mammogram and an ultrasound. At the ultrasound the Radiologist came in and told me he sees a mass and I would need a biopsy. I was terrified! A week later I had my biopsy. On September 1st 2022 biopsy results came back and showed I had cancer. The Biopsy initially diagnosed the cancer as DCIS, however, since there was a mass I need further testing. Thre...

By naan05 6 months ago

Everyone copes differently

First post and replies | Last post by gar3, 6 months ago

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Everyone copes with hard news differently. By sharing my experience, perhaps another kid out there may manage to give themself a bit more grace. Some general takeaways are that this journey is different for everyone, and there’s no right way to feel. Don’t be afraid to ask how you can best show up for your loved one; nobody can read minds, and it never hurts to ask. It's especially hard when you can't physically be with your loved one. I’m typically very quick to cry and don’t always have the best control over my emotions. I cry when I’m happ...

By gar3 6 months ago

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