The Breast Cancer Clubhouse

A clubhouse is a common space where members of a club gather and socialize.

Directions: This is an informal space, a multipurpose room to be used as you like. Introduce yourself and tell us your story! Ask a question! Tell us what’s on your mind! As always, you may withhold your real name and other identifying details to protect your privacy. To write a post, click on “Start a New Post.” To reply to someone else’s post, click on its title.

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Everyone copes differently

First post and replies | Last post by gar3, 2 years ago

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Everyone copes with hard news differently. By sharing my experience, perhaps another kid out there may manage to give themself a bit more grace. Some general takeaways are that this journey is different for everyone, and there’s no right way to feel. Don’t be afraid to ask how you can best show up for your loved one; nobody can read minds, and it never hurts to ask. It's especially hard when you can't physically be with your loved one. I’m typically very quick to cry and don’t always have the best control over my emotions. I cry when I’m happ...

By gar3 2 years ago

13+ Years As A Survivor!

First post and replies | Last post by momoftwo, 2 years ago

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Almost 11 years!

First post and replies | Last post by momoftwo, 2 years ago

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Diagnosed one month after turning 40

First post and replies | Last post by KristenC, 2 years ago

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When I hit the milestone of my 40th birthday, I did all the "things" you are supposed to do to celebrate, including a mammogram. The mammogram didn't detect anything out of the ordinary, but because I regularly performed a self breast exam (as a result of a scare when I was 35) I had found a small lump and they performed a sonogram and then did a biopsy. I always say my story could have been so different if I had not been doing self exams as I would have gone another full year before having another mammogram - by then things would have been so ...

By KristenC 2 years ago

Physical therapy after treatment

First post and replies | Last post by RandyL, 2 years ago

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Many breast cancer therapies can cause scarring, fibrosis, or musculoskeletal issues that require physical therapy. This is typically started with the physical therapist. As a partner, you can do these therapies at home. This provided needed post treatment therapy for my wife that was appreciated and brought us closer together. I highly recommend you learn such techniques to provide help and support. My wife videotaped her last session and we were able to continue doing the therapy at home.

By RandyL 2 years ago

2 Hospitals work together ❤️

First post and replies | Last post by FOF101, 2 years ago

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I was diagnosed in 2023 with stage 1 invasive ductal carcinoma and had a lumpectomy and radiation. Dr. Shook at St. Luke’s (South) was AMAZING and his staff coordinated EVERYTHING. I did my radiation at Menorah because I live close to that hospital and St. Luke’s radiation machine is at their Plaza location. The 2 hospitals work together so patients don’t have to drive far everyday for radiation.

By FOF101 2 years ago

20 Year Survivor, Diagnosed when Pregnant (cross posted in Sunshine)

First post and replies | Last post by Rozebud, 2 years ago

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I was diagnosed with stage IIIC Breast Cancer in January 2004, while 7 months pregnant with my second daughter (11/18+ notes, her2+,ER-PR+...although later determined to be hormone negative). Earlier in that pregnancy, I found lump in my breast but assumed it was either clogged milk duct/mastitis like I had the prior year while breastfeeding, or just pregnancy changes. I had also had benign cyst 8 years earlier in the same place. I had no risk factors or family history, so didn’t worry about it. Several months later I found a lump under my arm ...

By Rozebud 2 years ago

First post and replies | Last post by jleeh, 2 years ago

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My wife was diagnosed with Metastatic Breast Cancer in December 2022 and is being treated at KU

By davebrock... 2 years ago
Dr. Crane has taken extremely good care of her!

By jleeh 2 years ago
view all posts

First post and replies | Last post by jleeh, 2 years ago

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Anyone else supporting someone with metastatic?

By jleeh 2 years ago

First post and replies | Last post by momoftwo, 2 years ago

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Hi, I was diagnosed in 2013 with ductal carcinoma in situ. My testing and surgeries were all at KU in their main hospital. I had a wonderful experience there.

By momoftwo 2 years ago

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