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Bilateral Mastectomy Pain

First post and replies | Last post by Acctg55, 15 hours ago

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Hello everyone, my first day here, and thankful that I asked about support groups and they suggested this group. I was diagnosed Sept 25, and went through 6 rounds of chemo, and just had a double mastectomy on April 6. I still have two drains in, hopefully will be out by Friday. I know it's still early in recovery, but I feel like my boobs are still here weighing me down when I get out of bed. It's painful, but weird pain. Anyone know how long this pain will last? My surgeon says could be 6-8 weeks, but I'm impatient at this point. Been ...

By Acctg55 1 day ago
Hello! I am happy to talk to you...give me a call 816-509-3972. Probably easier to just talk to you vs type:-) Kelly Pitzer

By Kpitzer02 19 hours ago
In short, if you have expanders, they are very uncomfortable and that is what you are feeling. It takes a bit to get used to them.

By Kpitzer02 19 hours ago
Hi Acctg55! I had a bilateral mastectomy to expanders back in October of 25. This was followed by four rounds of chemo, reconstruction and now endocrine therapy.After the mastectomy, the pain is wild. There were nights when the nerve pain and phantom pain were almost tortuous. I, like you, stayed away from the narcotics and made do with tylenol and ibuprofen as well. It took the better part of a month for me to be able to feel like the pain was under control, the drains removed and I was back to feeling more like myself again.Fast forward to Ma...

By LWilliams... 19 hours ago
First off... If you had bilateral how is it that you still have cancer cells in the breast area... or is it closer to the back or underarm? If they know where it is why not surgically remove it ? Your body has had a lot going on and more chemo won't probably make the recovery any easier. You also run the risk of more side effects from another chemo. As a patient, ask more questions about that and consider the risks/side effects of any route. How long has this newer chemo been used and what is it's track record for effectiveness and side ef...

By Buttercup 18 hours ago
I’ve completed 13 of 14 Kadcyla treatments. They have been much easier on me than chemo. When I started treatments, I was given Zofran to prevent nausea but I discovered it was the cause of uncomfortable constipation so we stopped the Zofran after the first four or five treatments. The rest have been quite easy on me. I’ve experienced no nausea as long as I’ve had food in my stomach before or while receiving treatments. I’ve even brought Greek yogurt with me to my last two treatments to eat while receiving my infusions. The only side effect I’v...

By JanetB 18 hours ago
@lwilliams816 No expanders for me, at this point no reconstruction for me. Glad to hear your second surgery was so much better!

By Acctg55 16 hours ago
@buttercup To clarify, there was residual cancer left in my right breast when they removed it, so the chemo did not kill 100% of the cancer, hence they recommend me doing more treatment with the Kadcyla, which I've been told has been very successful in the clinical trials and to help prevent cancer from coming back. Appreciate the suggestions, I have a great support team of family and friends, so yes once I start feeling better I plan on venturing out! 🙂

By Acctg55 16 hours ago
@janetb Thank you so much, makes me feel better! And you reminded me about the Zofran, I never took that the first round because I had bad constipation from the anti-nausea they gave me before the chemo started, so I stayed away from Zofran. Now, they do want to give me that first before they start the Kadclya, but I may tell them no then, and see how it goes. I'm traumatized by the terrible constipation from the chemo, so definitely don't want to go through that again if I can help it! CONGRATS on being at the end of the treatment, and thank...

By Acctg55 15 hours ago
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First post and replies | Last post by Amy Steinhour, 5 months ago

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My name is Amy, and like many of you, I’ve walked through the whirlwind of diagnosis, treatment, surgery, and recovery. During that time, I realized how hard it is not just to need help—but to tell people how to help. Everyone says, “Let me know if you need anything,” but when you’re in survival mode, figuring out what to ask for can feel overwhelming. That’s why I built GiftWellSoon, a platform designed specifically for people going through cancer and other hard seasons of life. 💙 What is GiftWellSoon? GiftWellSoon is a care r...

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