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(@fiercelyfiesty)
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Joined: 3 weeks ago
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Newly diagnosed. Meeting my team Tuesday at KU. What questions should I ask? What do you wish you knew sooner? 
I have ductal carcinoma in situ and mestactic carcinoma in one lymph node. Personally, I have always felt strongly that I will opt for a double mastectomy as we have a strong family history and I’m 46. 
TIA


   
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(@janedoe7)
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Joined: 10 months ago
Posts: 68
 

Welcome! I think that's a choice I would be very comfortable with. For what it's worth, when I want some direction from my doctors, I ask "If it were your wife/sister/daughter, what would you tell her?" and they usually have an answer ready. 

Good luck with everything! What I wish I had known when I started was that I would come out of it with many positives. My perspective is better, my relationships are stronger, and I've met new people. I would strongly suggest that you let people help you even if you don't "need" it. I always did everything myself because I never wanted to be a bother to anyone. But I let people drive me to some of my appointments (the scary ones) and bring me food and we grew closer as a result.


   
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(@jleeh)
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Joined: 10 months ago
Posts: 26
 

I had a preventative double mastectomy at KU in September. Happy to answer any questions for you. Who are you seeing? 

sending you all of my love!


   
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(@fiercelyfiesty)
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Joined: 3 weeks ago
Posts: 3
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@jleeh I am seeing J Wagner, Q Khan and J Einck


   
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(@fiercelyfiesty)
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@janedoe7 thank you


   
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(@gwoodhood)
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Joined: 10 months ago
Posts: 15
 

@fiercelyfiesty I also had Dr. Wagner as my surgeon and she was fantastic! Best surgeon I know. I really did gave the option to do a lumpectomy or mastectomy and with her guidance, I decided the double mastectomy was the right choice for me. I still stand by this decision.


   
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