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13+ Years As A Survivor!

First post and replies | Last post by momoftwo, 1 year ago

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Hello all! I hit my 13 year cancer free mark on March 11th, 2024! I was diagnosed with invasive lobular carcinoma at age 40. I had a lumpectomy, 6 rounds of chemo, 7 weeks of radiation and 6 years of Tamoxifen. Not a club I asked to be in, but have met some amazing members and am always here to help, guide, pray, laugh, scream or talk with anyone struggling.

By KristenC 1 year ago
Congratulations on your milestone! Thank you for being here for others ❤️

By momoftwo 1 year ago
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Everyone copes differently

First post and replies | Last post by gar3, 1 year ago

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Everyone copes with hard news differently. By sharing my experience, perhaps another kid out there may manage to give themself a bit more grace. Some general takeaways are that this journey is different for everyone, and there’s no right way to feel. Don’t be afraid to ask how you can best show up for your loved one; nobody can read minds, and it never hurts to ask. It's especially hard when you can't physically be with your loved one. I’m typically very quick to cry and don’t always have the best control over my emotions. I cry when I’m happ...

By gar3 1 year ago

Diagnosed one month after turning 40

First post and replies | Last post by KristenC, 1 year ago

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When I hit the milestone of my 40th birthday, I did all the "things" you are supposed to do to celebrate, including a mammogram. The mammogram didn't detect anything out of the ordinary, but because I regularly performed a self breast exam (as a result of a scare when I was 35) I had found a small lump and they performed a sonogram and then did a biopsy. I always say my story could have been so different if I had not been doing self exams as I would have gone another full year before having another mammogram - by then things would have been so ...

By KristenC 1 year ago

Physical therapy after treatment

First post and replies | Last post by RandyL, 1 year ago

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Many breast cancer therapies can cause scarring, fibrosis, or musculoskeletal issues that require physical therapy. This is typically started with the physical therapist. As a partner, you can do these therapies at home. This provided needed post treatment therapy for my wife that was appreciated and brought us closer together. I highly recommend you learn such techniques to provide help and support. My wife videotaped her last session and we were able to continue doing the therapy at home.

By RandyL 1 year ago

2 Hospitals work together ❤️

First post and replies | Last post by FOF101, 1 year ago

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I was diagnosed in 2023 with stage 1 invasive ductal carcinoma and had a lumpectomy and radiation. Dr. Shook at St. Luke’s (South) was AMAZING and his staff coordinated EVERYTHING. I did my radiation at Menorah because I live close to that hospital and St. Luke’s radiation machine is at their Plaza location. The 2 hospitals work together so patients don’t have to drive far everyday for radiation.

By FOF101 1 year ago

20 Year Survivor, Diagnosed when Pregnant (cross posted in Sunshine)

First post and replies | Last post by Rozebud, 1 year ago

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I was diagnosed with stage IIIC Breast Cancer in January 2004, while 7 months pregnant with my second daughter (11/18+ notes, her2+,ER-PR+...although later determined to be hormone negative). Earlier in that pregnancy, I found lump in my breast but assumed it was either clogged milk duct/mastitis like I had the prior year while breastfeeding, or just pregnancy changes. I had also had benign cyst 8 years earlier in the same place. I had no risk factors or family history, so didn’t worry about it. Several months later I found a lump under my arm ...

By Rozebud 1 year ago

First post and replies | Last post by jleeh, 1 year ago

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First post and replies | Last post by jleeh, 1 year ago

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Anyone else supporting someone with metastatic?

By jleeh 1 year ago

First post and replies | Last post by momoftwo, 1 year ago

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Hi, I was diagnosed in 2013 with ductal carcinoma in situ. My testing and surgeries were all at KU in their main hospital. I had a wonderful experience there.

By momoftwo 1 year ago

Found at routine mammogram

First post and replies | Last post by Iamasurvivor, 1 year ago

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In late January 2022 I went for my routine mammogram at Menorah Medical Center. A week later I was called back for an ultrasound. Then I was called back for a biopsy another week later. On Feb 11, 2022 I got the dreaded call from my doctor that I had invasive ductal carcinoma. Two and a half weeks later I was having a chemo port surgically put in and a week later started 6 rounds of chemotherapy. What a whirlwind. My oncologist requested an MRI of the breasts after my initial diagnosis and discovered the tumor was much larger than the mammogr...

By Iamasurvi... 1 year ago

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