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First post and replies | Last post by Helen, 3 months ago

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I'm 30 years old and recently found out I have the BRCA 1 gene and I have a pretty extensive family history including my Mom. I also have very dense breast tissue. Wondering what I should do now that I know I have this gene? Do I just call and schedule a mammogram or does my PCP need to refer me for that?

By ToniT 3 months ago
Hi, @tonit! I am sorry to hear that you have to worry about this but so happy that you are ON IT! Yes, I think the next thing to do is call your primary care doc to begin the conversation. There are high risk programs at the hospitals that can better assess your risk and help you make a plan involving anything from regular screenings to medications to prophylactic mastectomy. There are members on here who have made these choices. Thinking of you as you process this stressful information. Really proud of you for not sticking your head in the san...

By janedoe7 3 months ago
Knowing you have the gene is an important first step in taking control of your health! I am also considered very high risk, with dense breast tissue and a strong family history of breast cancer survivors, including my mom and four aunts. It’s essential to start by consulting your primary care physician to develop a screening plan that works for you. Regular self-breast exams are key to early detection. I personally alternate between a breast MRI and a mammogram with an ultrasound every six months. While some insurance companies may not cover th...

By sjherman 3 months ago
I was first seen at the high risk clinic at St Luke’s, they took great care of me. Once I knew I wanted to do a double mastectomy I moved to KU. Your OB or PCP can get you a referral. KU has a great high risk program too. I did a DIEP flap reconstruction. They used my belly fat to reconstruct. Science is really cool! I’d be happy to chat more and answer any specific questions.

By jleeh 3 months ago
Knowledge is power so that is great that you have already done the genetic testing and know your family history. I ditto what has been suggested above. It is important to be seen at a high risk breast clinic by the same provider so that they can get to know you and monitor changes in your breast. I was seen at the high risk breast clinic at St. Luke's beginning in 2012 after a suspicious lump was self detected. I had very dense breast as well and was about A cup so small as well. Never thought I would find a lump with my own self exams but I di...

By Helen 3 months ago
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First post and replies | Last post by jleeh, 4 months ago

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Breast Cancer Awareness Month is bothering me

First post and replies | Last post by momoftwo, 5 months ago

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Lumpectomy vs mastectomy

First post and replies | Last post by janedoe7, 7 months ago

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11 year survivor!

First post and replies | Last post by cleo, 7 months ago

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How are you handling your high risk diagnosis?

First post and replies | Last post by Helen, 8 months ago

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First post and replies | Last post by Martina Ramirez, 9 months ago

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Surviving and Thriving

First post and replies | Last post by Iamasurvivor, 9 months ago

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I was diagnosed with Triple Negative Breast Cancer 9 years ago and grateful that I am still thriving.

By Thriving7 10 months ago
So grateful for modern medicine!

By Iamasurvi... 9 months ago
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Fear is always in the back of my mind

First post and replies | Last post by momoftwo, 3 months ago

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Hi all, I had my annual ultrasound this morning. After 11 years, you'd think I'd feel more comfortable with the process. The people are always friendly and encouraging, but the 5 - 10 minutes waiting for the tech to return after the initial reading seems to take forever. Thankfully, the reading went well, and I can breathe easily for another year. 😊 What helped me get through the waiting period? Nice music on my phone, some deep breathing, and positive thoughts. Let me know if I can support you through this process!

By momoftwo 3 months ago

Seeking Fellow Roller Skaters

First post and replies | Last post by Gr8fu11, 4 months ago

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Hi! I love to roller skate and am wondering if anyone is interested in meeting up at adult skate sessions? Thanks!

By Gr8fu11 4 months ago

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