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First post and replies | Last post by summers72983, 6 months ago

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Hi. I’m Lynn. I was just diagnosed with breast cancer. I am a nurse and used to work with breast cancer surgeons so I am somewhat familiar with the process. It is different being on the other side of the situation. I’m going for my appointments w surgeon, oncologist and radiologist on 4/11 but got a message today that they would like to move me up. I’ll talk to them tomorrow and see when they can get me in. It’s still very surreal.

By Lms7663 8 months ago
I got my marker results and unfortunately it’s Her2 positive. Has anyone undergone treatment for this?

By Lms7663 8 months ago
Hi there. I had her2+ and er+/pr+. Happy to talk to you about it anytime. I was diagnosed in Feb 2022 and have had super successful treatment and am cancer free now. Let me know if you’d like to chat.

By Iamasurvi... 8 months ago
@iamasurvivor Thank you. I’m waiting to read the full path report. All the nurse navigator told me was that it is Her2 positive so i don’t know about my hormone receptors yet. Because of this they said I don’t need to meet with the surgeon or radiologist as soon as they thought but they moved my appointment with the oncologist up to this coming Monday. can I ask what your treatment plan was? What med did you take and did you have chemo and:or surgery?

By Lms7663 8 months ago
@lms7663 Hi again. Obviously everyone’s treatment plan can vary but I had invasive ductal carcinoma 2.2cm and I also had some DCIS tissue next to the tumor. My treatment plan consisted of 6 rounds of chemotherapy 3 weeks apart (taxotere and carboplatin), then a lumpectomy, then 3 weeks of radiation, and one year of targeted therapy (3 weeks apart) with Herceptin and perjeta. This was based on the size of my tumor, my stage 1B, and nothing in my lymph nodes when biopsied during surgery. I know hearing that you have her2+ cancer is alarming, pl...

By Iamasurvi... 8 months ago
@iamasurvivor Thank you for that info. Yes, I hear wonderful things about the targeted medications. I have a smaller tumor -1 cm, but I’m am stage 2 and have a nuclear grade 3 with no known lymph node involvement at this point. I am an RN and worked for breast cancer surgeons but we dealt with the biopsy and lumpectomy or mastectomy treatment process, not the medication or chemotherapy part of the treatment. I’ll find out more Monday. Are there any questions I might want to ask the oncologist at KU?

By Lms7663 8 months ago
I was also at KU med with Dr O’Dea and she was fantastic. Ask them if they’ll be doing a breast MRI. I was able to get better measurements with the MRI than on a mammogram. Also the size of tumor can dictate whether chemo or surgery is done first. KU med walked me through the process extremely well so you’re in good hands. I’m sure they’ll offer this but I’d do genetic testing as well. Let me know if any other questions. Good luck and reach out if you need anything!

By Iamasurvi... 8 months ago
@iamasurvivor Thanks so much for the information. I will be seeing Dr Kahn at KU who I understand is the director of the cancer center there in Westwood. Did you ever cross paths with him? I should get good information at my appointment on Monday.

By Lms7663 8 months ago
I have heard of Dr. Kahn but never met him. I’m sure you’ll feel better knowing some details once you. Have your appointment. Thinking of you!

By Iamasurvi... 8 months ago
@iamasurvivor thanks so much. I read my pathology report and I am also ER and PR positive so sounds like we’re very similar.

By Lms7663 8 months ago
@iamasurvivor hey, I just started with Dr Kahn and I really like him. He’s very matter of fact and direct with his communication, which I appreciate. Some may not, but I appreciate that he just threw in there that I would definitely lose my hair and kept on talking. I did need him to repeat a few things and he did gladly. Very friendly. And when I messaged with a question the nurse responded and then he called me directly later to make sure I got the information I needed. He was so kind and reassuring that I can reach out anytime. I would guess...

By Fiercelyf... 8 months ago
@lms7663 the protocol of treatment worked on me and I hope the same for you!

By Iamasurvi... 8 months ago
@fiercelyfiesty this is really good to know. I’ll see him Monday. I glad to hear you like him. Thanks.

By Lms7663 8 months ago
@lms7663 Hi! I was just diagnosed recently; awaiting double mastectomy at KU. How are things going for you? I'm in nursing school, and am now going to have to pause that.

By summers72... 6 months ago
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My Cancer Journey As Mom

First post and replies | Last post by thilner2015, 6 months ago

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HER2 Triple Positive Breast Cancer My husband I just sat our 9-year-old down and told her. We explained what would happen and what toexpect during my treatment. We tried to mentally prepare for my change in appearance as well. Idecided the one thing I could control was to get ahead of my hair falling out, so when it started to fallout I had my husband and daughter help me shave my head.My husband had to take over cleaning, cooking, soccer practice, and friends had to drive my daughter toschool.My support system has always been wonderful. ...

By thilner20... 6 months ago

First post and replies | Last post by janedoe7, 6 months ago

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Navigating Breast Cancer with Kids

First post and replies | Last post by aborniger, 6 months ago

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Julie Rudman recently asked for advice on how to navigate breast cancer with kids for an upcoming podcast she's a part of. I wanted to share the answers I gave to her here as well, in case anyone else would find them useful. Mamas, you are stronger than you ever thought possible. Sending healing vibes to you all! Initial Communication and Coping How did you explain your cancer diagnosis to your children, and how did they handle it? My kids were pretty young when I was diagnosed. My son was about to start kindergarten and my daughter wa...

By aborniger 6 months ago

Painful Sex Treatment Options

First post and replies | Last post by Jenny_marshall, 6 months ago

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Hi! For those of you that have problems with painful sex, especially due to a lack of estrogen (I had a hysterectomy at 37 years old and loosing all of that Estrogen caused a lot of dryness and vaginal pain with sex). I wanted to share info on the Mona Lisa Procedure. It helps to remove stenotic (badly scarred) tissue in the vagina. This scarred tissue makes sex very painful. I got the Mona Lisa procedure to remove this tissue. It was amazing! I also now do vaginal estrogen on a limited basis. These have truly helped with my sex life. Unfortuna...

By Jenny_mar... 6 months ago

First post and replies | Last post by Jenny_marshall, 6 months ago

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New to the Club

First post and replies | Last post by janedoe7, 6 months ago

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I'm a two-time 4-year breast cancer survivor

First post and replies | Last post by YoliV5590, 6 months ago

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New to the journey

First post and replies | Last post by Iamasurvivor, 7 months ago

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New to the journey

First post and replies | Last post by Heyhay888, 8 months ago

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