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New to the Club

First post and replies | Last post by janedoe7, 2 months ago

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Hi, happy to find this group. I put off a mammo during Covid, then was dx June 1, 2021 with invasive lobular carcinoma. I was told at first it was caught early and I was stage one. I had a lumpectomy, chemo, radiation, then removal of lymph nodes. When I was done with treatment my doctor said in passing that I had been stage three. That was a bit of a shock. I was placed on Verzenio for two years and tamoxifen for 10 years. I’ve had three years of scans that show no sign of disease. I asked my doctor if I’m cancer free and she said no, because ...

By CH6121 2 months ago
Welcome, CH6121! First of all, I hope you are not hard on yourself for putting off your mammogram during Covid. It was an impossible time! For a while they were telling us not to do non-urgent medical visits, and then we all had so many real challenges to face that a hypothetical challenge like breast cancer was going to be lower down the list of things to address. A lot of people did the same thing you did. I saw that screening mammograms dropped by 44% during Covid. I had invasive lobular carcinoma too. We're a little club within a club! I'...

By janedoe7 2 months ago
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I'm a two-time 4-year breast cancer survivor

First post and replies | Last post by YoliV5590, 2 months ago

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New to the journey

First post and replies | Last post by Iamasurvivor, 2 months ago

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New to the journey

First post and replies | Last post by Heyhay888, 3 months ago

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Support for Kids

First post and replies | Last post by aborniger, 3 months ago

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If you are a cancer patient, in remission, or a survivor and have kids between kindergarten and senior year of high school, I highly recommend Kesem. It's a free summer camp that is exclusively for kids whose parent(s) have been affected by cancer and it gives them a chance to have fun and be kids again, as well as connect with others who understand what they're going through at home. They also do fall and spring meetup days so kids can reconnect in between sessions and to bring other new families into the community. When I was diagnosed, my...

By aborniger 3 months ago

PinPointPatientRecruiting.com

First post and replies | Last post by Buttercup, 4 months ago

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PinPointPatientRecruiting.com is looking for participants in a study. You can email Brooke Benford at brooke@pinpointrecruiting.com for information and to see if you qualify for the current study they are looking for participants. I did not qualify, but thought I'd pass this along to others who might be interested in checking it out. Since my type is so rare, I am not surprised...but you never know! HAPPY MARCH 1ST!!!

By Buttercup 4 months ago

Almost 11 years!

First post and replies | Last post by momoftwo, 5 months ago

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First post and replies | Last post by janedoe7, 5 months ago

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First post and replies | Last post by Helen, 5 months ago

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First post and replies | Last post by jleeh, 6 months ago

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