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New to the journey

First post and replies | Last post by Heyhay888, 2 months ago

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I just found out yesterday that I have Invasive Ductal Carcinoma and Carcinoma In Situ with lymphovascular association in my left breast. I got a phone call from the doctor’s office to schedule with the breast specialist and was told her first available was in three weeks! I told her that I was anxious about it possibly spreading and she was going to talk to the doctor and see if they can get me in sooner. I used to work as a phone triage nurse at an OB/GYN office and luckily have them in my corner so hopefully we can get that moved up. I know ...

By JenP323 2 months ago
Hi Jen. I'm only three months into the journey myself and want to offer that the first few weeks are the very worst. The waiting is almost worse than the diagnosis! Not sure where you're being treated but I found that St. Luke's was super speedy. Love their breast cancer center. I have finished my (20) rounds of radiation. Mostly nothing more than a nuisance, although the "burn" in the last week was definitely real. (It wasn't terribly uncomfortable; just looked crazy.) I'm now 3+ weeks out from completing that and you almost can't tell the dis...

By CCSK 2 months ago
Thank you so much for your reply! I’m anxious and ready to get going, but I’m trying to be patient knowing I’m not the only one these doctors are caring for right now.

By JenP323 2 months ago
Hi Jen, I am also new in this journey and was diagnosed right around Valentines Day. My total mastectomy is scheduled for next Thursday and I too have experienced anxiousness around the wait. My surgeon told me that from diagnosis to surgery, it’s usually three months. She assured me that this time in wait would not affect the staging or growth. I have Stage 2 invasive lobular carcinoma. All I can do it place my trust in my doctors and in this process, take a deep breath and hope for the absolute best. This has been a scary time and I am righ...

By Annie116 2 months ago
Hi Jen. I was also recently diagnosed. I am going to KU cancer center in Westwood. They said they try to get patients in within a week to 10 days. My PCP who referred me is a KU doctor so I’m not sue if that makes a difference. Good luck to you. 😊

By Lms7663 2 months ago
I felt the same way about hurrying things up! The doctors know what is safe so try to breathe and take it one step and a time, but I just wanted to say I so understand how you are feeling! XO

By Heyhay888 2 months ago
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Support for Kids

First post and replies | Last post by aborniger, 2 months ago

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If you are a cancer patient, in remission, or a survivor and have kids between kindergarten and senior year of high school, I highly recommend Kesem. It's a free summer camp that is exclusively for kids whose parent(s) have been affected by cancer and it gives them a chance to have fun and be kids again, as well as connect with others who understand what they're going through at home. They also do fall and spring meetup days so kids can reconnect in between sessions and to bring other new families into the community. When I was diagnosed, my...

By aborniger 2 months ago

PinPointPatientRecruiting.com

First post and replies | Last post by Buttercup, 3 months ago

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PinPointPatientRecruiting.com is looking for participants in a study. You can email Brooke Benford at brooke@pinpointrecruiting.com for information and to see if you qualify for the current study they are looking for participants. I did not qualify, but thought I'd pass this along to others who might be interested in checking it out. Since my type is so rare, I am not surprised...but you never know! HAPPY MARCH 1ST!!!

By Buttercup 3 months ago

Almost 11 years!

First post and replies | Last post by momoftwo, 3 months ago

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Hi all, I will hit my 11 year cancer free mark on Sept. 23, 2024! I had a double mastectomy but no chemo, radiation, or medication. I'm happy to be here and connect with you all.

By momoftwo 1 year ago
Congratulations - I am almost 13.5 years past diagnosis. I had a double mastectomy, no rads, 4 rounds of preventative chemo. Happy to connect! 😀

By ChefSBell 11 months ago
Congratulations on your milestone!!! ❤️

By momoftwo 11 months ago
Thank you! 😊

By momoftwo 4 months ago
@sheribell Thank you so much! 😍

By momoftwo 4 months ago
You are so very welcome - how are you doing these days? 😍

By ChefSBell 4 months ago
I'm well! Thank you 😊 I feel good; my family is well. I'm very fortunate. How are you doing??

By momoftwo 3 months ago
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First post and replies | Last post by janedoe7, 3 months ago

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First post and replies | Last post by Helen, 4 months ago

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First post and replies | Last post by jleeh, 5 months ago

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Breast Cancer Awareness Month is bothering me

First post and replies | Last post by momoftwo, 6 months ago

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Lumpectomy vs mastectomy

First post and replies | Last post by janedoe7, 8 months ago

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11 year survivor!

First post and replies | Last post by cleo, 8 months ago

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