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& personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By Janymiller, 2 days ago
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Treatment Decisions
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| I had a nipple sparing bilateral mastectomy in 2017 at KU. I had expanders placed and had implants about 6 weeks later. Im negative for BRCA gene, but my breast surgeon did tell me that my nipples w... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By KeepChanging, 2 days ago
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Treatment Decisions
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| Hi @holly For what its worth I am scheduled for my NSM to expanders at KU next week as well. I am BRCA2+. My surgery will be risk-reducing due to the mutation rather than for cancer treatment howev... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By S2425, 2 days ago
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Treatment Decisions
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| Hi @holly, I had a double mastectomy at KU that was nipple sparing, and I had tissue expanders to prepare for implants. I didn’t have chemo or radiation. It has been over a year since my reconstructiv... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By momoftwo, 2 days ago
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Treatment Decisions
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| Hi Holly, First off, you don't ever have to apologize in this group. We are here to hold each other up. You can be all over the place or laser-focused. We get it and want to help! I was BRCA negative,... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By LWilliams816, 2 days ago
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Treatment Decisions
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| Hi Holly! I had a nipple sparing DMX back in early October and opted for reconstruction with silicone implants. During the surgery, they installed expanders, which are sutured to your chest wall. I c... | ||
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RE: Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By jleeh, 2 days ago
Forum
Treatment Decisions
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| Hi Holly, I was preventative dmx with immediate DIEP at KU. I can't talk about the radiation side but I would say DIEP is totally worth it. I am open to any question you have - the first 5 days are ha... | ||
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Experience & personal recommendations re: expanders/implants post DMX w upcoming radiation & potential delayed DIEP
By Holly, 2 days ago
Forum
Treatment Decisions
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| I am scheduled to have a nipple sparing DMX on 4/15. I am BRCA2+ and just finished chemo for HR+HER2-. I will have 20 rounds of radiation. I have complete peace about the DMX part as screening didn’t ... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 5 days ago
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Forum
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| @jleeh Would appreciate any advice you're willing to share for sure. | ||
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RE: HI! Previvor and new Mom just moved back
By jleeh, 6 days ago
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Forum
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| @keepchanging I’m almost 2 years out from preventative double mastectomy. The fear does creep in as you get closer. I lost my mom recently to breast cancer and before she passed she told me that doing... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 6 days ago
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Forum
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| @janedoe7 A list of reasons really but on the short list; scan anxiety and timing. Timing and health more than anything. I'm as "fit" as I'm going to be and my kids aren't dependent on me physically ... | ||
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RE: HI! Previvor and new Mom just moved back
By janedoe7, 7 days ago
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Forum
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| @keepchanging, good luck with your double mastectomy surgery! I was curious what tipped the scale for you from monitoring to surgery. Were you waiting for the right time? Have you had one too many sca... | ||
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RE: HI! Previvor and new Mom just moved back
By KeepChanging, 1 week ago
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Forum
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| Hi Hailey. Previvor here too. Living the dream with a couple of rogue gene mutations. 😉 I've been monitoring for a couple of years now, planning for DMX surgery in a couple of weeks through KU. ... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Buttercup, 1 week ago
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Forum
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| One strategy for timing won't probably be best for all gals. Re: summertime... A/C that shouldn't be a huge problem. Biggest hurdle is finding things to help you stay cool if you have to sit out i... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Marie115, 3 weeks ago
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Forum
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| @s2425 Thank you for sharing your experience. I have decided to post pone. The garments seem to be the most challenging recovery step. Our heat, small kids, summer, work... all need to be considered. ... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By S2425, 3 weeks ago
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Forum
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| Hi - I had a bilateral mastectomy and had reconstruction 6 months later with implants and fat transfer from my stomach. I really hated the compression garment, which I wore 24/7 for 6 weeks. Going to... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Marie115, 3 weeks ago
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Forum
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| Thank you for sharing your story and insight Julia. I had a tough time after my initial surgery sitting still and not lifting- more challenging on me mentally. As a mom we are used to doing it all! My... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Buttercup, 3 weeks ago
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Forum
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| Back in the dark ages (1998) before micro vascular techniques, I had bilateral mastectomies with fat transfer from lower abdomen. (In those day you had to keep the fat's blood supply. So my lower tum... | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By Marie115, 3 weeks ago
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Forum
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| @jleeh 🤗 | ||
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RE: Fat transfer after mastectomy reconstruction recovery
By jleeh, 3 weeks ago
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Forum
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| My kiddos were 12, 12, and 9. I waited until September so we could still pool during the summer. Didn’t want to lose that time with them. I was also preventative and could wait. ❤️ | ||
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