The Breast Cancer Clubhouse

A clubhouse is a common space where members of a club gather and socialize.

Directions: This is an informal space, a multipurpose room to be used as you like. Introduce yourself and tell us your story! Ask a question! Tell us what’s on your mind! As always, you may withhold your real name and other identifying details to protect your privacy. To write a post, click on “Start a New Post.” To reply to someone else’s post, click on its title.

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Diagnosed one month after turning 40

First post and replies | Last post by KristenC, 4 months ago

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When I hit the milestone of my 40th birthday, I did all the "things" you are supposed to do to celebrate, including a mammogram. The mammogram didn't detect anything out of the ordinary, but because I regularly performed a self breast exam (as a result of a scare when I was 35) I had found a small lump and they performed a sonogram and then did a biopsy. I always say my story could have been so different if I had not been doing self exams as I would have gone another full year before having another mammogram - by then things would have been so ...

By KristenC 4 months ago

Physical therapy after treatment

First post and replies | Last post by RandyL, 5 months ago

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Many breast cancer therapies can cause scarring, fibrosis, or musculoskeletal issues that require physical therapy. This is typically started with the physical therapist. As a partner, you can do these therapies at home. This provided needed post treatment therapy for my wife that was appreciated and brought us closer together. I highly recommend you learn such techniques to provide help and support. My wife videotaped her last session and we were able to continue doing the therapy at home.

By RandyL 5 months ago

2 Hospitals work together ❤️

First post and replies | Last post by FOF101, 5 months ago

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I was diagnosed in 2023 with stage 1 invasive ductal carcinoma and had a lumpectomy and radiation. Dr. Shook at St. Luke’s (South) was AMAZING and his staff coordinated EVERYTHING. I did my radiation at Menorah because I live close to that hospital and St. Luke’s radiation machine is at their Plaza location. The 2 hospitals work together so patients don’t have to drive far everyday for radiation.

By FOF101 5 months ago

20 Year Survivor, Diagnosed when Pregnant (cross posted in Sunshine)

First post and replies | Last post by Rozebud, 5 months ago

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I was diagnosed with stage IIIC Breast Cancer in January 2004, while 7 months pregnant with my second daughter (11/18+ notes, her2+,ER-PR+...although later determined to be hormone negative). Earlier in that pregnancy, I found lump in my breast but assumed it was either clogged milk duct/mastitis like I had the prior year while breastfeeding, or just pregnancy changes. I had also had benign cyst 8 years earlier in the same place. I had no risk factors or family history, so didn’t worry about it. Several months later I found a lump under my arm ...

By Rozebud 5 months ago

First post and replies | Last post by jleeh, 5 months ago

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My wife was diagnosed with Metastatic Breast Cancer in December 2022 and is being treated at KU

By davebrock... 5 months ago
Dr. Crane has taken extremely good care of her!

By jleeh 5 months ago
view all posts

First post and replies | Last post by jleeh, 5 months ago

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Anyone else supporting someone with metastatic?

By jleeh 5 months ago

First post and replies | Last post by momoftwo, 5 months ago

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Hi, I was diagnosed in 2013 with ductal carcinoma in situ. My testing and surgeries were all at KU in their main hospital. I had a wonderful experience there.

By momoftwo 5 months ago

Found at routine mammogram

First post and replies | Last post by Iamasurvivor, 6 months ago

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In late January 2022 I went for my routine mammogram at Menorah Medical Center. A week later I was called back for an ultrasound. Then I was called back for a biopsy another week later. On Feb 11, 2022 I got the dreaded call from my doctor that I had invasive ductal carcinoma. Two and a half weeks later I was having a chemo port surgically put in and a week later started 6 rounds of chemotherapy. What a whirlwind. My oncologist requested an MRI of the breasts after my initial diagnosis and discovered the tumor was much larger than the mammogr...

By Iamasurvi... 6 months ago

Stage 1 Invasive Lobular Carcinoma

First post and replies | Last post by janedoe7, 6 months ago

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Hi! I was diagnosed with Stage 1 invasive lobular carcinoma in 2023. I am unbelievably lucky to have caught it so early. This is a sneaky cancer that often has no signs or symptoms. It was found at a routine mammogram at Diagnostic Imaging Centers. I did a lumpectomy and radiation. I also did genetic testing to make sure I didn't have the CDH1 mutation, and I didn't. Best wishes to anyone else out there with invasive lobular carcinoma!

By janedoe7 6 months ago

How it was found

First post and replies | Last post by FOF101, 6 months ago

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I was diagnosed in 2023 and it was a shock! I had a lump I could feel in my left breast but I always have cysts so I wasn’t worried. I got it checked out and it was a cyst. Then they told me they found a mass in my right breast (that I could not feel) and it was not a cyst. I knew right then that I had breast cancer. I had a biopsy and it was confirmed.

By FOF101 6 months ago

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