The Breast Cancer Clubhouse

A clubhouse is a common space where members of a club gather and socialize.

Directions: This is an informal space, a multipurpose room to be used as you like. Introduce yourself and tell us your story! Ask a question! Tell us what’s on your mind! As always, you may withhold your real name and other identifying details to protect your privacy. To write a post, click on “Start a New Post.” To reply to someone else’s post, click on its title.

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ER+ PR+ and HER2+

Member
Joined: 6 months ago
Posts: 2
Topic starter  

I was diagnosed with Stage 2b Invasive Ductal Carcinoma that was estrogen positive, progesterone positive and HER2 positive in January 2020.  I received 6 chemo treatments initially and after a double mastectomy and 30 days of radiation (because it was found in 3 of my lymph nodes), I had 14 more treatments of Kadcyla to treat the HER2+.   Kadcyla was recently approved by the FDA at that time and was Herceptin alongside a smaller dose of chemotherapy.  The treatments were only 30 minutes each every 3 weeks and though it was still chemo, my hair did start to grow back during that time and I was far less sick.  I continue to take an aromatase inhibitor (Arimidex) daily similar to Tamoxifen for 8-10 years.  I don't have as many side effects from that drug but I did find that my thyroid couldn't tolerate any of the chemo so I am now on Synthroid for that.  I also made the decision to have a total hysterectomy at age 43 to be proactive.  I did not have the BRCA gene, but my cancer was aggressive- I felt it was better to be safe!


   
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Member
Joined: 6 months ago
Posts: 44
 

Are you having any side effects to Arimidex? My doctor has suggested I switch to it from Tamoxifen since I’m.now post menopausal. Thanks!


   
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