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HI! Previvor and new Mom just moved back

First post and replies | Last post by KeepChanging, 3 days ago

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Hi everyone!!My name is Hailey. I am in my early 30s and I am a Previvor who just moved back to the Kansas City area after a decade in Chicago. My mother had metastatic breast cancer and passed away in 2011, I do not carry mutations, but I’ve been screening for the past several years and I’ve had many biopsies. I just had my first mammogram at KU Cancer Center (benign!) but saw a card for this group and think that it’s completely fabulous. Peer support is so major, even as a Previvor or someone who is screening, and I’m so thankful this exists ...

By Hailey Al... 2 months ago
Hi! I am a survivor, but had originally planned to be a previvor. 😉 KU is great and where I went for monitoring pre-cancer, during cancer and post. I have the BRCA mutation and one little one pre-cancer and one post! Always happy to chat!!

By madelineb... 2 months ago
Hi Hailey, and welcome back to KC! Being a new mom is overwhelming for sure and I hope you’re finding time for yourself, if only to catch up on sleep! My story is somewhat similar to yours; my mom passed away over twenty years ago after a recurrence of breast cancer and I also don’t carry any mutations that put me at an increased risk for breast cancer. I’m now 63 and have been followed for many years by the high-risk folks in the KU Breast Cancer Center and have been more than satisfied with my care. I have regular screening including annua...

By Juliesfan... 2 months ago
Hi Hailey! I had never heard the term "Previvor" before, but I am a Previvor as well, with no known breast cancer genes. I am also from Chicago. I loved raising my children in KC. Congrats on your new baby, so many wonderful changes in your life! My mom and 3 aunts have survived 6 breast cancer diagnoses among the 4 of them. They were all initially diagnosed in their early 50s. My mom passed away from causes unrelated to breast cancer, but my aunts are living healthy lives in their late 70's and 80s. I am fortunate to be able to hav...

By sjherman 2 months ago
Hi Hailey. Previvor here too. Living the dream with a couple of rogue gene mutations. 😉 I've been monitoring for a couple of years now, planning for DMX surgery in a couple of weeks through KU. A bit older than you, as my kids are high school and college age, but happy to connect anytime. Enjoy those littles and welcome back to KC!

By KeepChang... 1 week ago
@keepchanging, good luck with your double mastectomy surgery! I was curious what tipped the scale for you from monitoring to surgery. Were you waiting for the right time? Have you had one too many scares? Sending best wishes!

By janedoe7 5 days ago
@janedoe7 A list of reasons really but on the short list; scan anxiety and timing. Timing and health more than anything. I'm as "fit" as I'm going to be and my kids aren't dependent on me physically anymore. From studies I've read, my cancer risk elevates drastically at the age I am now so trying to maintain agency where I can. Won't lie, wonder frequently these last few weeks if I'm making the right decision, but learning to trust myself slowly.

By KeepChang... 4 days ago
@keepchanging I’m almost 2 years out from preventative double mastectomy. The fear does creep in as you get closer. I lost my mom recently to breast cancer and before she passed she told me that doing this surgery and knowing I wouldn’t be told I have breast cancer was the best gift I could give her. I’m here for any questions you have. I had my surgery done at KU. Best decision I’ve ever made. 🩷

By jleeh 4 days ago
@jleeh Would appreciate any advice you're willing to share for sure.

By KeepChang... 3 days ago
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Fat transfer after mastectomy reconstruction recovery

First post and replies | Last post by Buttercup, 1 week ago

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RE: July 28th Gathering/Walk at Oak Park Mall

First post and replies | Last post by Buttercup, 1 month ago

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Anyone Else with Bilateral Breast Cancer?

First post and replies | Last post by Fiercelyfiesty, 2 months ago

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First post and replies | Last post by janedoe7, 3 months ago

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First post and replies | Last post by thebreastcastg, 4 months ago

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Hi everyone — I wanted to share something I created as a fellow breast cancer survivor

First post and replies | Last post by Amy Steinhour, 5 months ago

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My name is Amy, and like many of you, I’ve walked through the whirlwind of diagnosis, treatment, surgery, and recovery. During that time, I realized how hard it is not just to need help—but to tell people how to help. Everyone says, “Let me know if you need anything,” but when you’re in survival mode, figuring out what to ask for can feel overwhelming. That’s why I built GiftWellSoon, a platform designed specifically for people going through cancer and other hard seasons of life. 💙 What is GiftWellSoon? GiftWellSoon is a care r...

By Amy Stein... 5 months ago

Change in friendships after cancer

First post and replies | Last post by janedoe7, 5 months ago

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Cancer Ghosting

First post and replies | Last post by Nope, 5 months ago

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Grocery Discounts

First post and replies | Last post by Buttercup, 6 months ago

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Trying to find where the latest grocery discount winner is listed to say Congrats! Also wanted to give Julie Rudman some love/Kudos at getting Hen House to sponsor this! I was a recipient in August and it was easy to use and Hen House staff were wonderful to do it. My husband is on my card and they also honor it when he made a purchase. Not sure where on here I should be posting about this. Is there a place here regarding this program? Thanks!

By Buttercup 6 months ago

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